Showing posts with label research bias. Show all posts
Showing posts with label research bias. Show all posts

Monday, 27 July 2009

Need a gift for your shrink?

Check out chapter three of Greg Craven's book What Is The Worst That Could Happen?, download a preview here. What I like about Greg Craven is that he manages to explain things in a way, that even shrinks have a chance to get it. "Research bias for dummies", something. Or: "Why most psychiatric science is junk". This could be the ultimate hate gift for your shrink. Well, right after Alice Miller's The Drama of the Gifted Child, that is, which, as someone recently told me, made her shrink exclaim: "Hell, this is the most awful book I've ever read!" and, subsequently, prescribe huge doses of Trilafon to her.

Thursday, 17 July 2008

The other side of mental health science

And here it is, now also on this blog: the article "The other side of mental health science" by Steven Morgan, that I mentioned in a previous post, and that puts a number of common misunderstandings about "mental illness" right. For everyone who, for whatever reason, hasn't been to Gianna's blog yet to read it there.


The other side of mental health science

BY STEVEN MORGAN stevenmorganjr(at)gmail(dot)com

Scientific studies about mental health are widely considered to be the ultimate source for objective information about psychiatric disorders. However, most people do not or cannot access these studies themselves. They instead rely on information from doctors, organizations, peers, the media, and so on. Unfortunately, this second-hand information is often oversimplified (i.e. “Mental illness is a chemical imbalance in the brain”), spoken with too much certainty (i.e. “Schizophrenia is a chronic brain disease that is lifelong and incurable”), or skewed and manipulated to justify an opinion (i.e. “People with Bipolar Disorder must take medication to live well”). As a result, popular myths now overshadow much of the data available from science.

The following list is a collection of facts from peer-reviewed scientific journals and several research-based books. Each source is hyperlinked in References, meaning the reader can literally click on the name of the study to access it from the Internet. Given the heated atmosphere of opinions about psychiatric disorders, the hyperlinks were included to make this document user-friendly so that readers can research the facts themselves.

FACTS ABOUT PSYCHIATRIC DISORDERS

I. A chemical imbalance for mental illness has never been found in anyone’s brain.1 There is no way to measure the level of neurotransmitters in synapses between brain cells, so there is no measurement of a healthy chemical balance that would allow for comparisons of “too many chemicals” or “too few chemicals” to be made.2,3 That is why our brains are not scanned for chemical imbalances when we are diagnosed. Even if chemical imbalances are one day found, it does not mean that they cause psychiatric disorders. Indeed, since the brain changes in response to both internal stimuli (thoughts, imagination, feelings, etc.) and external stimuli (sunlight, trauma, playing the piano, etc.),4,5 a chemical imbalance could just as likely be a biological reflection of environmental, emotional, psychological, and spiritual stress as a primary cause of it. Finally, the idea that specific genes cause mental illness is inaccurate, leading one prominent genetic researcher to state in the American Journal of Psychiatry: “The impact of individual genes on risk for psychiatric illness is small, often nonspecific, and embedded in complex causal pathways… Although we may wish it to be true, we do not have and are not likely to ever discover `genes for’ psychiatric illness.”6

II. Long-term studies from around the world demonstrate that the majority of people diagnosed with major mental illness – including schizophrenia – significantly improve or completely recover over time.7,8,9,10,11,12

III. Adverse childhood events can lead to mental health problems in adulthood – including psychosis, bipolar affective symptoms, depression, borderline traits, and so on – and the vast majority of people diagnosed with major psychiatric disorders have histories of trauma, neglect, or abuse.13,14,15,16,17,18,19,20,21,22,23 Thus, in many cases, the cause of psychiatric symptoms is childhood trauma. In this context, saying “mental illness is just like diabetes” or “mental illness is a physical brain disease that is no one’s fault” is inaccurate. Consider this parallel: if I am stabbed by a knife, is my bleeding caused by weak skin, or is it caused by the knife, the stabber, and the surrounding circumstances? Linking the cause of psychiatric symptoms to the appropriate source – i.e. a traumatizing environment instead of one’s brain or genes – is crucial in determining an effective treatment path to recovery and in actually changing larger social, cultural, and familial problems that contribute to mental breakdown.24

IV. A large subset of people diagnosed with schizophrenia fare better with little or no medication usage.25,26,27 Several alternative treatment models that use little or no medications for people experiencing psychosis have outcomes equal to or better than treatment-as-usual.28,29 Also, antipsychotics are far less curative than generally acknowledged: in the most recent and largest ever study of antipsychotic efficacy for people diagnosed with schizophrenia, 74% of participants (1061 of 1432 people) quit taking their initially-assigned antipsychotic within 18 months, mainly due to ineffectiveness or intolerable side effects.30 Of these unsatisfied participants, about half (509 people) dropped out of the study altogether, while the other half entered a second phase in which they tried a different antipsychotic. During the second phase, 44% of participants assigned to clozapine (20 of 45 people) and 75% of participants assigned to another antipsychotic (282 of 378 people) again discontinued it within 18 months.31,32

V. The brain can heal, and the biological abnormalities linked to psychiatric symptoms are often reversible or can be compensated for by other areas of the brain.33,34,35,36,37,38,39,40 In other words, psychiatric recovery can happen on a biological level, both with and without medication usage.

VI. According to repeated studies by the World Health Organization, people diagnosed with schizophrenia living in developing countries have significantly better outcomes than those living in developed countries.41 The WHO suggests the better outcome “…was unrelated to drug treatment since many in the developing world did not receive continuous treatment. Psychosocial factors, such as better family support, community tolerance, extended networks and more favorable job opportunities, have been postulated as the reasons for this observation.”42

VII. Antidepressant medications are no more effective than a sugar pill for people with mild to moderate depression, and only slightly more effective than a sugar pill for people with severe depression.43

VIII. Efforts to increase a person’s awareness of their diagnosed mental illness – known as “illness insight” – may lead to self-stigmatization that decreases self-esteem and hope.44,45,46,47 Research shows that the “mental illness is like any other physical disorder” message behind many anti-stigma campaigns actually increases the public’s fear, prejudice, and desire for distance from people who are diagnosed.48

IX. Psychiatric diagnoses are not based on medical testing, but instead on self-report and professional interpretation according to culturally-defined notions of disease. They are therefore arbitrary and often unreliable, especially over time, being prone to racism, sexism, classism, and Eurocentric bias. Many people receive different diagnoses from different doctors, which muddles treatment options and can lead to unnecessary or mismatched medication usage.49

REFERENCES

For links that direct you to these sources see Steven’s hyperlinked version of this paper for further study:
1 Lacasse JR, Leo J. The Media and the Chemical Imbalance Theory of Depression. Society 45(1):35-45, Feb 2008.

2 Lacasse JR, Leo J. Serotonin and Depression: A Disconnect between the Advertisements and the Scientific Literature. PLoS Medicine 2(12), e392 doi:10.1371/journal.pmed.0020392, Nov 2005.

3 Breggin PR, Cohen D. Your Drug May Be Your Problem: How and Why to Stop Taking Psychiatric Drugs. Philadelphia, PA: Da Capo Lifelong Books, 2007.

4 Doidge, N. The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science. New York, NY: Viking Adult, 2007.

5 Begley, S. Train Your Mind, Change Your Brain: How a New Science Reveals Our Extraordinary Potential to Transform Ourselves. Ballantine Books, 2007.

6 Kendler KS. “A gene for…”: The nature of gene action in psychiatric disorders. Am J Psychiatry 162:1243-1252, 2005.

7 Davidson L, Harding C, Spaniol L, (Eds.). Recovery from severe mental illness: Research evidence and implications for practice. Boston, MA: Center for Psychiatric Rehabilitation͵ Boston University, 2005.

8 Harding CM, Brooks GW, Ashikaga T, et al. The Vermont longitudinal study of persons with severe mental illness I: methodology study, sample and overall status 32 years later. Am J Psychiatry 144:718-726, 1987b.

9 DeSisto MJ, Harding CM, Ashikaga T, et al. The Maine and Vermont three-decade studies of serious mental illness, I: matched comparison of cross-sectional outcome. Br J Psychiatry 167:331-338, 1995a.

10 Huber G, Gross G, Schuttler R. A long-term follow-up study of schizophrenia: psychiatric course of illness and prognosis. Acta Psychiatr Scand 52:49-57, 1975.

11 Ogawa K, Miya M, Watarai A, et al. A long-term follow-up study of schizophrenia in Japan–with special reference to the course of social adjustment. Br J Psychiatry 151:758-765, 1987.

12 Ciompi, L. Psyche and Schizophrenia. Cambridge, MA: Harvard U. Press, 1988.

13 Read J, van Os J, Morrison AP, Ross CA. Childhood trauma, psychosis and schizophrenia: a literature review with theoretical and clinical implications. Acta Psychiatr Scand 112(5):330-50, Nov 2005.

14 Rosenberg SD, Lu W, Mueser KT, Jankowski MK, Cournos F. Correlates of adverse childhood events among adults with schizophrenia spectrum disorders. Psychiatric Services 58(2):245-53, Feb 2007.

15 Hammersley P, Dias A, Todd G, Bowen-Jones K, Reilly B, Bentall RP. Childhood trauma and hallucinations in bipolar affective disorder: preliminary investigation. Br J Psychiatry 182:543-7, Jun 2003.

16 Garno JL, Goldberg JF, Ramirez PM, Ritzler BA. Impact of childhood abuse on the clinical course of bipolar disorder. Br J Psychiatry 186:121-5, Feb 2005.

17 Morgan C, Fisher H. Environment and schizophrenia: environmental factors in schizophrenia: childhood trauma–a critical review. Schizophrenia Bulletin 33(1):3-10, Jan 2007. Epub Nov 14 2006.

18 Janssen I, Krabbendam L, Bak M, Hanssen M, Vollebergh W, de Graaf R, van Os J. Childhood abuse as a risk factor for psychotic experiences. Acta Psychiatr Scand 109(1):38-45, Jan 2004.

19 Chapman DP, Whitfield CL, Felitti VJ, Dube SR, Edwards VJ, Anda RF. Adverse childhood experiences and the risk of depressive disorders in adulthood. J Affect Disord 82(2):217-25, Oct 2004.

20 Herman JL, Perry JC, van der Kolk BA. Childhood trauma in borderline personality disorder. Am J Psychiatry 146(4):490-5, Apr 1989.

21 Harkness KL, Monroe SM. Childhood adversity and the endogenous versus nonendogenous distinction in women with major depression. Am J Psychiatry 159(3):387-93, Mar 2002.

22 Vythilingam M, Heim C, Newport J, Miller AH, Anderson E, Bronen R, Brummer M, Staib L, Vermetten E, Charney DS, Nemeroff CB, Bremner JD. Childhood trauma associated with smaller hippocampal volume in women with major depression. Am J Psychiatry 159(12):2072-80, Dec 2002.

23 Edwards VJ, Holden GW, Felitti VJ, Anda RF. Relationship between multiple forms of childhood maltreatment and adult mental health in community respondents: results from the adverse childhood experiences study. Am J Psychiatry 160(8):1453-60, Aug 2003.

24 Read J, Ross CA. Psychological trauma and psychosis: another reason why people diagnosed schizophrenic must be offered psychological therapies. J Am Acad Psychoanal Dyn Psychiatry 31(1):247-68, Spring 2003.

25 Harrow M, Jobe T. Factors involved in outcome and recovery in schizophrenia patients not on antipsychotic medications: a 15-year multifollow-up study. Journal of Nervous and Mental Disease 195(5):406-414, 2007.

26 Whitaker R. The case against antipsychotic drugs: a 50-year record of doing more harm than good. Med Hypotheses 62(1):5-13, 2004.

27 Bola JR, Mosher LR. At issue: predicting drug-free treatment response in acute psychosis from the Soteria project. Schizophr Bulletin 28(4):559-75, 2002.

28 Calton T, Ferriter M, Huband N, Spandler H. A systematic review of the Soteria paradigm for the treatment of people diagnosed with schizophrenia. Schizophr Bulletin 34(1):181-92, Jan 2008. Epub Jun 14 2007.

29 Mosher LR, Hendrix V, Fort DC. Soteria: Through Madness to Deliverance. Xlibris Corporation, 2004.

30 Lieberman JA, Stroup TS, McEvoy JP, Swartz MS, Rosenheck RA, Perkins DO, Keefe RS, Davis SM, Davis CE, Lebowitz BD, Severe J, Hsiao JK; CATIE Investigators. Effectiveness of antipsychotic drugs in patients with chronic schizophrenia. N Engl J Med 353(12):1209-23, Sep 2005. Epub Sep 19 2005.

31 McEvoy JP, Lieberman JA, Stroup TS, Davis SM, Meltzer HY, Rosenheck RA, Swartz MS, Perkins DO, Keefe RS, Davis CE, Severe J, Hsiao JK; CATIE Investigators. Effectiveness of clozapine versus olanzapine, quetiapine, and risperidone in patients with chronic schizophrenia who did not respond to prior atypical antipsychotic treatment. Am J Psychiatry 163(4):600-10, Apr 2006.

32 Stroup TS, Lieberman JA, McEvoy JP, Swartz MS, Davis SM, Rosenheck RA, Perkins DO, Keefe RS, Davis CE, Severe J, Hsiao JK; CATIE Investigators. Effectiveness of olanzapine, quetiapine, risperidone, and ziprasidone in patients with chronic schizophrenia following discontinuation of a previous atypical antipsychotic. Am J Psychiatry 163(4):611-22, Apr 2006.

33 Morgan, S. Rethinking the Potential of the Brain in Major Psychiatric Disorders. Retrieved July 6, 2008, from http://www.mindfreedom.org/kb/diagnostics/rethinking-the-brain

34 Bernier PJ, Bedard A, Vinet J, Levesque M, Parent A. Newly generated neurons in the amygdala and adjoining cortex of adult primates. Proc Natl Acad Sci USA 99(17):11464-9, Epub 2002 Aug

35 Draganski B, Gaser C, Busch V, Schuierer G, Bogdahn U, May A. Neuroplasticity: changes in grey matter induced by training. Nature 427(6972):311-312, Jan 2004.

36 Merzenich, M. Brain plasticity-based “cognitive training” elevates BDNF. Message posted to http://merzenich.positscience.com/?p=35, Apr 2007.

37 Bremner JD, Elzinga B, Schmahl C, Vermetten E. Structural and functional plasticity of the human brain in posttraumatic stress disorder. Prog Brain Res 167:171-86, 2008.

38 Gould E, Graziano MSA, Gross C, Reeves AJ. Neurogenesis in the Neocortex of Adult Primates. Science 286:548–552, 1999.

39 Bieling P, Goldapple K, Garson C, Kennedy S, Lau M, Mayberg H, Segal Z. Modulation of Cortical-Limbic Pathways in Major Depression: Treatment-Specific Effects of Cognitive Behavior Therapy. Arch Gen Psychiatry 61:34-41, Jan 2004.

40 Schwartz, JM, Begley, S. The Mind and the Brain: Neuroplasticity and the Power of Mental Force. New York, NY: Harper Perennial, 2003.

41 Jablensky A, Sartorius N, Ernberg G, Anker M, Korten A, Cooper JE, Day R, and Bertelsen A. Schizophrenia: Manifestations, Incidence and Course in Different Cultures. A World Health Organization Ten-Country Study. Psychological Medicine Monograph Supplement 20. Cambridge: Cambridge University Press, 1992.

42 World Health Organization. Schizophrenia: Youth’s Greatest Disabler. Retrieved July 6, 2008, from http://searo.who.int/en/Section1174/Section1199/Section1567/Section1827_8055.htm

43 Kirsch I, Deacon BJ, Huedo-Medina TB, Scoboria A, Moore TJ, Johnson BT. Initial severity and antidepressant benefits: a meta-analysis of data submitted to the Food and Drug Administration. PLoS Medicine 5(2):e45, Feb 2008.

44 Lysaker PH, Roe D, Yanos PT. Toward understanding the insight paradox: internalized stigma moderates the association between insight and social functioning, hope, and self-esteem among people with schizophrenia spectrum disorders. Schizophr Bulletin 33(1):192-9, Jan 2007. Epub Aug 7 2006.

45 Watson AC, Corrigan P, Larson JE, Sells M. Self-stigma in people with mental illness. Schizophr Bulletin 33(6):1312-8, Nov 2007. Epub Jan 25 2007.

46 Link BG, Cullen FT, Struening E, Shrout PE, Dohrenwend BP. A Modified Labeling Theory Approach to Mental Disorders: An Empirical Assessment. American Sociological Review 54(3): 400-423, Jun 1989.

47 Link BG, Struening EL, Neese-Todd S, Asmussen S, Phelan JC. Stigma as a barrier to recovery: The consequences of stigma for the self-esteem of people with mental illnesses. Psychiatric Services 52(12):1621-6, Dec 2001.

48 Read J, Haslam N, Sayce L, Davies E. Prejudice and schizophrenia: a review of the ‘mental illness is an illness like any other’ approach. Acta Psychiatr Scand 114(5):303-18, Nov 2006.

49 For a research-based and in-depth overview of the problems with subjective diagnosing, see Chapters 3 & 4 of:
Bentall, RP. Madness Explained: Psychosis and Human Nature. London, England: Allen Lane, 2003.

Tuesday, 10 June 2008

Looking the wrong place - Another update on "Strokes of insight and blind spots"

When I say, that Jill Bolte Taylor seems to me to be a very conscious and compassionate person, this is especially based on her statement, that an important, though often underestimated, quality for caregivers to have is being able to meet their clients where these are, as well as to be aware of and take responsibility for the signals (beyond verbal language) they send.

Jill Bolte Taylor's own experience, as she describes it in the interview, is that even though an individual is not capable of communication through commonly understandable verbal language, this doesn't mean the individual neither is capable of perceiving his or her environment's signals. On the contrary, as she states, often individuals who are in a state of mind that inhibits their ability to communicate understandable through verbal language, while the environment interprets this state of mind as also inhibiting these individuals' perception of their surroundings, their sensitivity toward sense impressions, their intuition, actually is highly increased.

As words lose their (commonly agreed upon) meaning, if it is because of a stroke that disables an individual's left brain hemisphere, and thus the language center, too, as experienced by Jill Bolte Taylor, or if it is because of a psychological insecurity in being in the world, that causes symbols no longer automatically to be taken for the real thing, that causes a separation of the symbol (the signifier, the word) from the symbolized (the signified, the thing), all attention is directed toward the real thing, leaving the symbol more or less emptied of its symbolic contents, and being nothing but an arbitrary sound pattern, free to be filled with and applied to purely individual meaning, free to become transformed from being a commonly understood code to being a more or less private, individual code, bordering on becoming a thing in itself.

The ability to use language is a natural one, but language itself is not a natural phenomenon. It is a cultural one. If it were a natural one, different coding would not be possible. Neither "poetic language" nor "psychotic language", with both being a play on words, a code, each on its level, would exist. If emotional crisis were a biological phenomenon, like a stroke, it would not be possible for an individual to regain his/her ability to communicate in a commonly understandable way just through (re-)gaining a certain security in being in this world. Emotional crisis is not a natural, biological, phenomenon. It is a cultural, i.e. psychological, social, psycho-social, one.

An individual's degree of anchoredness in language, his/her degree of anchoredness in which the French psychoanalyst Jacques Lacan calls "the Symbolic Order", actually is the only criterion diagnozed in regard to emotional crisis. Although it is diagnozed on various levels, thus providing a seemingly wide range of seemingly different "symptoms". Without exception, all these "symptoms" refer to an individual's perception of the world. Identifying this perception through looking at the individual's reaction to whatever is perceived.

Jill Bolte Taylor doesn't say it explicitly, nevertheless her statements at the interview imply a view of "psychotic language" - i.e. a view of "the psychotic way of perceiving the world" - as being a language completely deprived of meaning. Mentioning her "schizophrenic brother" in the context of an interview, that focusses on her own perception of the world during a period at which she herself was physically deprived of perceiving the world by means of language, language thus being nothing but incomprehensible noise to her, she implies, that his "schizophrenic" perception of the world must be the same (and this implication, of course, is which fuels her research-efforts as well as her engagement in NAMI). It isn't.

Verbal language, as well as the human Ego and the Symbolic Order as a whole, is a cultural phenomenon, and as such not nearly as rooted in our being as the natural, non-verbal signals, we send. In contrast to nature, culture, in the shape of verbal language, thinking and the Ego, is built upon more or less shaky ground. Although our culture trains us to ignore non-verbal signals in favour of verbal ones, the non-verbal ones are the only ones for us left to react to, the moment nature (the right brain hemisphere) for one or the other (i.e. for a physiological or a psychological/social) reason takes over. If this is because the function of the left hemisphere is interrupted physiologically through a head injury, or a stroke, or if it is because the value and reliability of its function's results are questioned by the right hemisphere's function, as it is in emotional crises such as so-called "schizophrenia".

"Schizophrenic's" often do not react "appropriately" to verbal language because they, on an unconscious level, see through its arbitrariness. Which they do react extraordinarily appropriately to is non-verbal language. In a culture that widely isn't aware of the non-verbal signals that are sent by its members, this can't be recognized. Neither it can be recognized by the "schizophrenic" individual him-/herself as long as it remains an unconscious process. While an individual who consciously chooses to go beyond the reactive Ego, because s-/he has become aware, conscious, of the reactive Ego's arbitrary character, would have to be called "enlightened", in a spiritual language-code.

Why would an individual, in spite of all cultural training, choose to question the meaning of words, of verbal language, and instead choose to rely on and react to non-verbal signals only? Among others, R.D.Laing and Gregory Bateson have provided an answer to this decades ago: An individual whose reactions to verbal language continuously by his/her surroundings are characterized and, subsequently, rejected as insufficient and/or incorrect, sooner or later, and consequently, will resort increasingly to attempting to read the non-verbal signs that are displayed, while rejecting the verbal ones, in order to "get it right".

This, of course, involves that the individual concerned develops a "sixth sense" for non-verbal signals, that s/he becomes extremely sensitive to these, just as Jill Bolte Taylor experienced herself to be, while her perception of verbal signals was inhibited due to physical brain dysfunction.

The parallels with emotional crisis seem obvious, at first glance and on a superficial, formal level, and may easily be mistaken as a proof for "mental illness" to actually be due to a physical brain dysfunction. As they are by Jill Bolte Taylor and mainstream psychiatry.

However, as mentioned above, restoring an individual's trust in verbal communication just by helping this individual to become aware of the processes that lead to him/her becoming insecure, or distrusting, would not be possible if the distrust was due to a physical dysfunction. Neither would it be possible for anyone to ever find a meaning in "psychotic language", which then truly would represent pure gibberish. While it only is seen as pure gibberish by people, who are not capable of overcoming their own cultural conditioning, in the shape of their own Ego. The parallels between emotional crisis, or what is called "psychosis", and a spiritual emergency are far more striking than those to a physical brain dysfunction as soon as the observer him-/herself is capable of going beyond the limitations of egoic thinking.

We today live in an era, where our culture has moved further away from (human) nature than ever before. Which almost exclusively characterizes our existing culture, is a just as exclusive acknowledgement of the human Ego as the one and only valid standard, everyone and everything is judged by. While the human Ego manifests itself through verbal language and thinking. If Descartes simply was wrong, or if he maybe became misinterpreted, I'll leave to the reader to decide...

I completely agree in Jill Bolte Taylor's statement, that it is essential for caregivers to meet their clients wherever these are at the moment. In contrast to her, I nevertheless don't see the clients of the mental health system met where they are as long as this system remains dominated by the egoic concept of brain diseases (i.e. moral judgements of an individual's behavior, lacking any scientific proof to be real, biological diseases). Actually, I see more harm than good done by forcing the mental health system's clientele to adopt the mental health system's perception of it as being physically brain dysfunctional and thus dependent on physical (medical) help, rather than accepting and respecting the clientele's own perception of itself, no matter how compassionately this coercion is performed. Indeed, the more compassionately it is performed, the more harm is done, as the discrepancy between form and content, the discrepancy between verbal and non-verbal signals, deepens with every increase in compassion with which the coercion is brought forward. Once again, the clientele is exposed to the very same experience of ambiguity that originally caused it to reject verbal communication as inauthentic, and thus unreliable, untrustworthy: the vicious circle becomes consolidated, rather than broken, with a chronification of the crisis as an almost inevitable result.

True, non-egoic acceptance and respect for individuals in emotional crisis requires not only formal compassion and consciousness. It requires even more content-related compassion and consciousness. Unfortunately, I don't see the latter in neither Jill Bolte Taylor's nor NAMI's or the mental health system's thinking at all. While it remains impossible to meet anyone wherever they are with compassion and consciousness limited to a purely formal, and thus inauthentic, level.

No matter how many brains Jill Bolte Taylor manages to sing together for further, neuroanatomic research, neither she nor any of her colleagues will ever find anything that unmistakably could distinguish the brain structure of an individual labelled "schizophrenic" from that of any other individual. It's like a friend once said: "Sometimes I'd like to tap them on their shoulder: 'Hey, have you ever considered that you might be looking in the wrong place?' "

Tuesday, 20 May 2008

Did you know about NIDS?

Curious as I am, after listening to Larry Simon's interviews with Grace Jackson, I of course went on a Google search - and found this transcript of a lecture Dr. Jackson held at Birmingham City University in 2004.

Scary stuff, presented in a very intelligible way, and with just the right amount of - black - humour ("It’s probably such a long word that this is why the doctors don’t often say it!", "But these are what doctors frequently don’t tell their patients about, or perhaps they think it doesn’t happen so often.") to make it a treat to read, in spite of the "message".

Putting together a reply to a mail, I'd just been thinking about "informed consent", and the National Health Service of Denmark's recent statement that full information to patients on side effects wasn't always appropriate and desirable, since it might cause patients to refuse medical treatment, before I came across this transcript. Well, as I wrote in my mail reply, I can vividly imagine which are the medications the least information on side effects will be provided for, or, to put it in another way, who are the people, who will be least informed... Also in future.

Frankly speaking, this is totalitarian to me. Especially since it is a proven fact, that anything else, even no treatment at all, actually has better long-term outcomes than medication when it comes to emotional crises.

So, go and get informed, and think twice before you say "yes" to any psychotropic drug you're offered! If you're given a choice, that is.

(Geez, since we apparently don't have any professionals with the same expertise as Grace Jackson - or should it be that they just don't want us to know??? - I will have to do something about this, at least summing it up somehow in Danish, one of these days.)