Sunday, 8 February 2009

The Wind Never Lies - Steven Morgan's recovery story

You've probably already read it at Gianna's blog. Anyway, for those here who haven't, or who'd like to enjoy Steven's powerful writing in this no less powerful story once again, here is Steven Morgan's recovery story The Wind Never Lies - original pdf-version here at Vermont Recovery's website.

Thanks to Steven for allowing me to post his account here. And, yes, the diagnosis, Steven gives himself at the end also works for me. The only one, that ever has worked and ever will work for me.

The Wind Never Lies
by Steven Morgan stevenmorganjr(at)gmail(dot)com

When I was young I believed the world spoke to me. Lightning split across the sky to the pulse of my thoughts. Rings around the moon prophesized the apocalypse. My cat winked at me to let me know he understood. Clouds parted like curtains to welcome a shining God.

For most of my youth this deep connection to the Natural world mystified me, pulling me into forests and spinning my imagination wild. Then at age twenty-two I finally discovered its secret.

Earlier that year I had been diagnosed with major mental illness. Suddenly I had wondered – often painfully – how much of my past was led not by free will or cosmic connection, but by disease. As I searched for answers, I absorbed medical texts, self-help books, and bestselling memoirs. I grew increasingly vulnerable to biological explanations for my behavior – Your brain is broken – in part because these theories absolved me of guilt and responsibility for experiences that were shameful. For instance, I was relieved to learn that repeatedly tapping in patterns of three to save my grandmother’s life was caused by an overheating of my caudate nucleus. And I felt less maniacal knowing that six months contemplating death every hour was caused by low serotonin.

Yet the flipside – the explosive creativity, moments of divine insight, periods of super-wit and magnetism, communication with Nature – was not so easily resigned to biological determinism. How was I to make sense of this paradox, that while some mood swings are grave and disabling, others are rich with meaning and evolvement?

According to the respected literature Bipolar Disorder is a disease of the brain. This means I would have to deny scientific reason to cherry-pick which extremities are diseasified and which are not based on their subjective worth.

At the time, I needed answers, not another harrowing epoch of existential angst, so I adopted a mental illness worldview and began to label almost everything that veered up or down in my experiences as caused by pathology in my head. In effect, I re-authored my life story, tossing fragments of my history into clinical categories of mania and depression.

One day I came across text that specifically labeled “believing the wind is communicating with you” as a symptom of Bipolar Disorder. I immediately thought about my friend. She had also felt a deep connection to the world, and she was also diagnosed with Bipolar Disorder. We had shared moments of profound synchronicity in which the wind had danced inside our unmedicated conversations at exactly the right moment, too right to have been a coincidence.

With my new perspective, there was only one explanation for this experience and others of a similar nature. They were simply neurochemical errors devoid of meaning.

From then on, the world still spoke to me, but I stopped listening. When the wind would swarm me at too perfect a moment to be coincidental, I would remind myself, “The wind isn’t speaking to you. You have a mental illness that makes you believe otherwise.” I began to lose trust in my intuition and the significance of my experiences, and the way I made meaning of the world suddenly became a suspect for deceit. Such is the effect of being diagnosed with an illness that presumes to know your mind better than you ever can. You resign your voice and become a doubter.
***
My resignation to a forecast of disability was short-lived, however. I have always harbored a fierce independence that – whether consciously or unconsciously – puppeteers my actions, and eventually we sought to unwed mental illness. But first I had to make major life changes.

At the time I was fulfilling a typical Bipolar prognosis by living at my father’s house as an unemployed artist. My fresh diagnosis was an ace in the hole to excuse inaction, but I felt ashamed and irresponsible for not holding my weight as a man. In an effort to jumpstart my life, I dove into a respectable social program that trains and places promising college graduates as teachers in the poorest areas of the country.

Here was a chance to reclaim my dignity. Here was a challenge to prove I could be successful just like everyone else. Here was an opportunity to show my friends and family I was not a lost cause naïve to the real world and blanketed by idealism. I invested all my pride in the endeavor, throwing away my Bipolar label overnight and the sedating mood stabilizer that came with it.

My training consisted of grueling eighteen-hour work days for five weeks straight. At first I was vivacious, often praised by my colleagues for creativity and energy, but by the end I had completely burned out.

I headed to my assigned region of South Dakota with barely any life-force. In a lonely house along a dirt road, I was overwhelmed by sleeplessness, paranoia, disconnection, feelings of abandonment and utter exhaustion. Despite a desperate attempt to revive myself with exercise and meditation, I eventually fell apart and landed in a hospital.

Here is what I wrote several months after the experience:
When I walked into the hospital, slow as a ghost, my arms bloodied and face covered in agony, I noticed the hospital workers noticing me. It felt very intrusive, and I wore a scared, nervous face in front of their inquisitions, both verbal and silent.
“Soooooooo, how long you been bipolar?” The doctor’s chirpy South Dakotan accent made the question all the more intolerable. I felt like her question was cruel, invasive, insensitive, ignorant, said with a doctor’s ease while I sat there in the gloom of my misery expected to answer in a coherent way.

“What kind of question is that?” I replied. I wasn’t confrontational. Indeed, I was scared because deep down, the question made me feel more insane than I had previously acknowledged.

Even now, I can feel the humiliation of awakening in that rocky bed: eyes weighted with tears, skin torn by teeth marks, throat lined with liquid charcoal, hand punctured by IV, thoughts clouded by haldol, heart stinging with guilt, mind terrified and confused. And I recall the doctor inches away from my face holding a pill between her thumb and index finger. “This will make you feel better,” she smirked with vague condescension, as if the boundless suffering before her was just another Bipolar gone off his meds…shame on him.

I cannot explain in words the trauma of those months. What I can tell you is that for years a mark had been appearing on the center of my chest that changed in color according to my moods. Though it had arrived in a shade of light brown, the year after South Dakota it doubled in size – like a virus spreading – and deepened into a blood red. Every morning thereafter, I saw that mark in the mirror and it reminded me of my utter failure at life, as inescapable as my breath beneath it.

I wanted the rest of the world to see my pain too. One night, after drinking and ripping car keys across my forearm, I took a razor and shaved my head – a highly symbolic act since growing out my hair had led to my first girlfriends – then grabbed a knife and hacked away at my face, chest, and arms.

Alongside a second hospital stay, it was becoming too difficult to deny I had serious problems, and equally as alluring to again accept the bottomline that mental illness explained me. Tired and defeated, I stopped trying to connect the dots and came to see my breakdown in South Dakota as the result of quitting medications, getting manic, and crashing into depression. With that association in mind I became terrified of discontinuing medications ever again. And there were plenty of people to confirm the wisdom of my fear. In fact, I soon discovered that all Bipolar advice orbits around one unshakeable core: Whatever you do, no matter how good or stable you feel, NEVER quit your meds, or else…

This way of thinking is justified by the belief that Bipolar is an incurable chemical imbalance in the brain which medications help restore. Given the overwhelming presence of this theory in the media, medical texts, and amongst professionals and peers, I presumed it was backed by hard science and became invested in taking pills for the rest of my life.

I even began openly expressing to others that I was taking ‘my meds,’ as if the choice made me a ‘good patient’ worthy of inclusion and accolades. However, my emergence into a walking advertisement for the pharmaceutical companies came at the price of repressing internal conflicts. Indeed, no matter how much support and validation people offered, no matter how many times I reminded myself mine was a medical disease ‘like diabetes’ which required medical solutions, the pills never quit instilling within me their unlisted side effects of shame, unnaturalness, isolation, and dependency. It is simply impossible to forget you are crazy when you eat from five bottles of pills every day.

Still, I could not consider quitting medications because I could not think outside my experiences. To survive then, I lowered my expectations and silenced my shame.

And with that I swept away the shards of my identity, aimlessly crawling through a new world where the limit came before the sky, and I solemnly accepted that my mind would forever be prisoner to the punishment of my brain.
***

After a brief relationship resurrected feelings of abandonment, the mark over my chest was aching and my soul was sinking. In response, I sought some project to once again restore my worth. Eventually my efforts transpired into creating a film about Bipolar Disorder. I sold many of my possessions to purchase film equipment, all the while rationalizing a need to push myself into highs and lows to make the movie more realistic.

After months of mad creativity, I recall an evening where I could not form sentences from beginning to end. A couple of days later I wrote a suicide note and tucked it into my mattress, then checked into a hospital.

My previous hospitalization had been relatively helpful, but this stay was pure damage. Having my shoelaces taken away now felt degrading, pointing to stick-figured faces – Happy, Sad, Angry – while setting a daily goal now felt infantilizing, smoking in a cage with other demoralized people now felt depressing, being locked indoors after voluntarily checking-in now felt infuriating, being told not to carry on conversations with the opposite sex now felt discriminating, and being observed every fifteen minutes during my sleepless evenings now felt invasive.

Yet my integrity was buried beneath a need to be liked, so I behaved as a good patient, never connecting my humiliation to external circumstances.

After a week I lied to the psychiatrist about my suicidal status, and upon release I made a vow: I will never return to a psychiatric hospital, no matter what sacrifices are necessary to stay afloat.

To pass each day I drank just enough beers to sedate my thoughts. To pass each night I popped sleeping pills at dusk. Though I remained desiccated by suicidal thoughts for months, I knew from experience that eventually the pain would dissolve.

There was also a reason to be hopeful. While researching the aforementioned film, I had met a woman who raised money for me to attend the state’s Certified Peer Specialist Project, which trains people with psychiatric labels to work in the mental health system from a peer perspective. Though I knew nothing about this line of work, I was encouraged by the prospect of employment.

At the two-week training, I kept my recent hospitalization a secret, and was skilled enough at hiding disillusionment to push through classes for the first week. Then, over the weekend break I hiked eleven miles to a desolate beach. As I stood in front of the ocean, I was desperate to feel the force of Nature as I had in years past, but she was now vacuous and dead.

When I returned to the training I broke down sobbing to the lead facilitator. She listened to my confusion and loss, then revealed some of her own struggles, particularly as a writer. Referring to a creative project she was working on, she said, “If I don’t finish this, I will have failed at life.” At any other time, in any other context, her words would have slipped by, but instead they flipped a switch.

Suddenly I realized I too could fail at life, which meant I too could succeed, which meant that life was not just a careless unfolding but purposeful, and if she could emerge from immense struggles to inhabit meaning, perhaps I could too.

This brief sense of optimism carried me through the second week of training, and upon returning home I began the slow work of moving away from lost causes and toward some kind of intentional, integrated life.
______________________________

Jim was a 60-year old bear of a man, fluff but stern with eyes that frequently watered from inspiration. He sat on a meditation cushion on the floor to look upwards at me as a gesture of humility. There was a seriousness for truth in the air which I immensely valued. He never reduced any of my experiences to mental illness nor used any diagnostic vocabulary, but I still subscribed to those contexts for making meaning.

At our first therapy session, I poured out my Bipolar story while he listened patiently, still as a rock. In the final minutes he responded: “Now, I would like to tell you about myself.” Then he happened upon exactly the right words, in exactly the right no-bullshit tone, with exactly the right conviction: “Steven, I too am a wild man.” And he meant it.

From then on, I knew I would be leaving practicalities at the door. Our work was to map dense forests of archetypes, dreams, gods, love, manhood, and madness. He introduced me to the work of Carl Jung, whose concepts were a lantern in the darkest realms of psyche.
During our fourth meeting together, I haphazardly recalled a dream. I had always dreamed vividly, often shaken in the morning by their complexity of imagery and intensity of message. Though I had derived some truth from them in the past, I had never been able to decode their ultimate function.

The dream I spoke of contained a buffalo, who appeared near the end and told me, “Do not be afraid.” I remember feeling the dream was inconsequential, but Jim treated it with sacredness, remarking, “Steven, there is nothing meaningless about Wakan Tanka.” Wakan Tanka is the name given to the Buffalo/Great Spirit by the Lakota Sioux, whose land I had lived on while in South Dakota. Though I had failed to make the obvious connection, Jim helped me realize that the buffalo’s appearance in my dream meant something. I was being communicated with.

The more I gave attention to my dreams, the more they responded, and soon I was navigating symbols too multifaceted to be trivialized in words. The immediate effect of this experience was profoundly healing. For one, the messages directly opened up locks to expansion and elevation, but more significantly they became an umbilical cord back to God.

While diagnosis had disconnected me from others and my own experiences, my dreams mended this separation by reconnecting me to humanity, the divine, Nature, and also to the inseparableness of the three. Their mythological nature made me feel important again, as if I were decoding a great secret that was inaccessible to – or at least denied by – most people.

There was admittedly a dangerous element of ego-satisfaction (“I’m special!”) built into this process that would need addressing later on, but at the time the pride was absolutely necessary for restoring my sense of value to the world.

Of course, nine months of therapy was not all “Ah ha!” moments. There was grieving over relationships and suffering from opening the floodgates of repression and clearing the spiderwebs to my past. But Jim became a father in these scenarios, validating my secrets and loving me for the volatile creative spirit that so infused my passions yet isolated me from others. He even told me once he loved me, and he meant it, a moment of naked humanity that single-handedly patched a tear in my heart.

All of my work with psyche culminated in a peak experience. I had been reading Eastern spiritual texts for years, but despite a brief flirtation with meditation in South Dakota had yet to actualize it. One night I decided to try again, and as I sat in the moonlight in front of a white wall, a surge of energy transmuted me, presenting a ritualistic dance of truths and visions that shook my consciousness to its core. For the two months that followed, I lived behind a colorful trance through which I could see auras and vivid patterns everywhere. At first, meditation fostered this psychedelic experience, but as the intensity faded it became a vessel for me to a clearer and more direct world.

During this time of evolvement, I used my training as a peer specialist to work at a progressive recovery center for adults with diagnoses. Inspired by the beautiful people who came there, I began to grasp the concept of recovery in mental health. To me, recovery meant that I could live a meaningful life with illness. My self-conception shifted from believing disease fueled my emotions to believing disease fueled some of my emotions, and I graduated my story from I am Bipolar to I have Bipolar. Still, I was locked into psychiatric seermongering that my brain would forever be hostile in its natural state.

Then one day everything changed.
***
After moving to Vermont for a new job, I began attending meetings and trainings with individuals who were leaders in the consumer/survivor/ex-patient movement. At one of these week-long trainings, one of the facilitators was a bright and humane man whose empathic charisma immediately earned my respect. Midway through the week, he revealed he had been diagnosed with schizophrenia and was not taking medications. Now, until that moment, despite all my research and conversations, I had never met nor heard of anyone diagnosed with major mental illness who was successfully living without medications.

I was perplexed. I probed for his secret, and he smiled warmly, replying, “I believe that if this is something you want to do, you will find a way.” The integrity in withholding his path empowered me to find my own without his influence. Yet his presence was enough – a living example that life without medications was possible – to inflame my will. The second before I was staying on my chemical regime for life. Now I was interested in quitting.

I approached withdrawing with caution. There was enough distance between my present experiences and past meltdowns to forget the force of cyclonic emotions. I was terrified that my brain would revert to its diseasified operations once relieved of its medicinal police. I cut most of my doses slowly to test the outcome, while maintaining a commitment to a healthy lifestyle as fundamental to staying centered.

The whole process took six months, after which I noticed two shifts: my mind sharpened and my heart opened. Both of these factors were double-edged swords. On the one hand I could think more clearly and feel a wider spectrum of aliveness. On the other hand my restored intellect would once again lead me to face the graveness in our world, and my increased sensitivities would once again produce dense emotions in response.

But the real challenge came to my identity. At first I was too occupied with watching for signs of mental slippage to indulge in existential contemplation. But after a few months, as I realized I was clearer and even relatively grounded, the question inevitably arose: What happened to the chemical imbalance in my brain?

To find answers I started researching heavily. Instead of relying – as I had in the past – on government agencies, major organizations, professionals, and bestselling books for explanations of mental illness, I went straight to the source: to the scientific journals that provide empirical evidence to support or refute psychiatric theories.
***
The first and most striking fact I unearthed was that a chemical imbalance had never been observed in a human brain. Surely, I thought, this must be a mistake, as everything I read elsewhere concluded that an imbalance of neurotransmitters was the cause of mental illness. Such a ubiquitous claim would have to be backed by solid science, right? I then discovered there was no way to measure live neurotransmitter levels in the human brain, so there was no “healthy level” of neurotransmitters by which to even make comparisons. Furthermore, I learned that if chemical imbalances did exist, they could be caused by a person’s experiences. Therefore, if I did have an imbalance, I would have no way of determining whether it had biologically erupted to cause my psychological, spiritual, and emotional crises, or whether it was a biological reflection of them.

Soon enough, I realized that even though the chemical imbalance theory was a gross oversimplification of how the brain and mind operate, it was coasting through the masses on a wave of propaganda designed and funded by pharmaceutical giants, who directly benefitted from its treatment implications.

As my presumptions fell apart, I investigated more into the concept of psychiatric recovery. I found that nearly all long-term studies indicate that the majority of people diagnosed with major mental illness significantly recover over time. That was news. Furthermore, I learned that medications are ineffective and even harmful to a large minority of people with major diagnoses, and that some alternative treatment models which use little or no medications have produced better results than treatment-as-usual. That was news, too.

But if mental illness is a brain problem, and if people who experience mental illness can recover significantly, what happens to their brain problem? Is it fixed? Was mine fixed?

At this juncture I stumbled onto neuroplasticity. In science, neuroplasticity refers to the brain’s natural ability to change, adapt, and heal across the lifespan. I learned that the brain was highly malleable, changing its structure and chemistry in response to both internal and external stimuli – from thinking positively to experiencing trauma. Most importantly, I learned that utilizing the brain’s natural potential to heal, people were recovering from massive strokes, head traumas, overcoming learning disabilities, rewiring obsessive-compulsive behavior, erasing the pain of phantom limbs, restoring memory acuity, enhancing cognitive processing during old age, learning to see without eyesight, strengthening muscles just by thinking about them, using meditation to create lower-stress neurological states, and on and on.

If people could train their brains to overcome these problems, why not major mental illness?

The research base for neuroplasticity and psychiatric recovery was small, but there was enough evidence to strongly suggest that many of the biological abnormalities correlated with psychiatric symptoms were reversible or could be compensated for by other areas of the brain.

And so I quite naturally asked, had my brain physically changed? Had my lifestyle changes reversed my mental illness on a physiological level?

Certainly this was the case with obsessions and compulsions. Whereas I once ‘got stuck’ performing irrational rituals all the time to relieve anxiety, years of challenging my thoughts had equipped me to disengage from habitual mindstreams. With the power to observe and respond in different ways, I completely eliminated most obsessions and compulsions. Studies into Obsessive-Compulsive Disorder have visually documented that such efforts actually rewire the brain.

But Bipolar Disorder was different. It was always presented as chronic, persistent, and lifelong. Was I just in remission like the literature said, an unmedicated brain temporarily strong but ready to surrender at the first invasion of stress?

I was not satisfied with that hopeless hypothesis. It seemed a slick way to firewall psychiatric creed – “No one beats Bipolar Disorder” – against anyone who is well without medications. So I changed the question from Am I still Bipolar? to Who decides what is Bipolar and what is not?

I was amazed that by merely asking a different question, I encountered a hidden world of alternative perspectives. I dove into criticism of psychiatry – most notably into its history – and grew outraged at what I found. I came to realize that mental illness was a culturally-defined construct, prone to bias and judgment. Indeed, I learned that the Diagnostic and Statistics Manual used by professionals to diagnose people had no medical objectivity whatsoever, and was instead a collection of opinions about behavior that changed with social trends.

There was no doubt that people with major diagnoses underwent profound psychological, emotional, and spiritual suffering. Yet the evidence that such suffering was caused by a biological disease was flimsy, no more convincing than the evidence that such suffering was caused by a complex psychological reaction to overwhelming life circumstances. But biological psychiatry had won the rights to define mental illness, in no small measure because it met the ideological needs and financial ambitions of pharmaceutical companies, who in turn funded many of its institutions, scientists, and research grants. The endless other vessels to understanding behavior – sociology, psychology, anthropology, mythology, spirituality, or just plain ol’ individual interpretation – had been overpowered.

As I learned and integrated this information into my worldview, the glue that stuck mental illness to me loosened. I started to wake up to a different reality, one in which I used terms like experiences instead of symptoms, trauma instead of disease, problems instead of illness, and neuroplasticity instead of chemical imbalance. I engaged in a process of re-authoring my life story once again, casting off the disease paradigm and shifting my self-conception from I have Bipolar to I am fully human. At the same time I experienced an incident of painful discrimination that reminded me of my status in society.

I had applied for an expensive scholarship to attend a breathwork retreat with progressive psychiatrist Stanlislov Grof and Buddhist psychologist Jim Kornfield. My scholarship was approved, after which I was sent a standard medical questionnaire. At the top it indicated the workshop was not appropriate for people with certain conditions, including those “with mental illness.” However, I assumed the workshop’s pioneering facilitators would factor in my current health, which I documented in detail as evidence that I was “appropriate.” After a lengthy discourse with Dr. Grof’s assistant in which I further pleaded my case, Dr. Grof personally rejected my scholarship on the grounds I was a risk.

I was totally devastated. My enormous efforts to arise from the restraints of diagnosis were simply not enough to convince others I was not disabled. No matter how I conceived of myself, my psychiatric history would forever follow me. Though I found my ensuing rage challenging to navigate without medications, I was equally thankful that I could feel such intensity again. In the past, I would employ coping skills to eliminate strong feelings, but this time I used them as a catalyst for action and advocacy.

Over the next year, I translated the research I had gathered into written resources and presentations. I worked with other mental health workers to create more recovery-based environments, while bringing my new perspective into support groups as a facilitator and educator. I also began sharing my story publically, and each time I uncovered more and more of my authentic voice.

And something strange happened: that mark over my chest that had gauged my pain for eight years, that had been confirmed by a dermatologist as a stress indicator and not an allergic reaction, that had physically mirrored my mind as it shattered and my heart as it choked, that mark of suffering disappeared.
______________________________


It has been nearly two years since I quit medications, nearly four years since I last entered a hospital seeking help, and nearly one year since I first began writing this story. Nothing has been steady, and I have stumbled along a rocky path that is at times overwhelming, at times insightful. Such is life, and I am grateful for it.

Each day, my story grows and changes in unpredictable ways, but one thing has become clear in my understanding: I am not nor have I ever been mentally ill.

Yes, at certain times I fit all the criteria for Bipolar II in the Diagnostic and Statistics Manual, but the conclusions of a small group of academics who create taxonomies of human behavior hardly constitute my truth, thus I grant them no authority. Instead, I perceive my experiences as a complex manifestation of intrinsic character, society and culture, relationships, physical health, biological processes, past experiences, collective energies, and forces beyond my understanding, and each varies in degree depending on the situation.

But none of my experiences are ill.

Indeed, I cannot believe that I have something inside me called Bipolar Disorder, for my thoughts and emotions which could be labeled as such are not separate from my selfhood and therefore I will not postulate them as disordered. That would be denying and perhaps hating myself. All of it – the ups, the downs, the middle ground - is me. I cannot apply the same logic of having a disease like diabetes toward the myriad of feelings and experiences that I essentially am. Otherwise, I would have to split my mental content and emotions – both of which often escape my conscious control – into healthy and unhealthy compartments according to arbitrary judgments from doctors whom I have never met, and to be honest, that’s absurd, dismissive of existential purpose, and detrimental to the integrity of my complex existence. It also breeds more inner conflict.

I believe that in most instances, though not all, the reduction of experiences to biological causality sucks dry the poetry of life and denies that extremes can in fact be the final, necessary, and dangerously unpredictable step before new maturation.

So where does this leave me? Things come up, things go away, and when they do, there I am. The wind blows, but it never lies. When despair arrives, I am despair. When fired up arrives, I am fired up. If I choose to sink back into a witnessing state cultivated by meditative practice, I am witnessing. States of existence – dangerous to judge and painful to deny, rolling on and on and on, each one pushes toward the next by some force which I do not comprehend. It is the Great Mystery, and I feel utterly okay not having figured it out.

This is not to deny the impact of extrinsic events upon well-being. Like nearly everyone who receives a major psychiatric label, traumatic experiences have influenced me and continue to contribute to my suffering. As a society, we all need to wake up to the obvious connection between trauma and psychiatric disorders. But just as I am no longer willing to resign my belief that the wind is communicative to a neurochemical error, I am equally unwilling to resign my emotional states solely to the past. In all truth, there is no way to neatly sum up why I entered a psychiatric hospital in 2004. It all happened on the tail end of 24 years – that’s 756,864,000 seconds – of being alive. And who could possibly understand such an expanse?

What is important to me now is to take full responsibility for what I do, to know that there are storylines that glimpse truth, and to learn and experiment with living in ways that are intuitively authentic. And since intuition and authenticity grows, there is no endpoint, no enlightenment, no final solution to or ultimate recovery from suffering.

And thank God, for what a liberation it is to know that – just like you – I am plainly human: irreducible to theoretical constructs, unfathomable in my fullness, aching and celebrating with pain and love, moving in all directions at once, complex and stacked, an imperfect being and a sliver of God’s perfection.

Alas, it’s a diagnosis that works for me.

Sunday, 1 February 2009

The environmentalist version of Star Wars

As I actually at times are really really sick and tired, and fed up, and you-name-it, with hearing people defend - yep, defend! - psychiatrists and their camp followers, trying to tell me, that those poor bastards really do believe they're helping, that their main interest really would be to help people in crisis, that they really do not know what (huge harm) they're doing, and that, consequently, I would have to be nothing but compassionate and forgiving and whatnot - this video-clip says pretty much exactly how I feel about the issue.

Enjoy.

The environmentalist version of Star Wars

Thursday, 29 January 2009

Self-actualization is a disease

If you haven't heard it yet: HealthCentral has bought Wellsphere. As I commented on Gianna's blog, I'm just glad, I didn't take the bite!!!

Well, since I couldn't remember to ever have visited HealthCentral's website, I went there tonight to have a look at it - I became even more glad, I didn't join Wellsphere - and came across a very interesting article.

Obviously, if ever you get into a situation where you'd need to reconsider your life, your identity, your being in this world, for instance because you were traumatized and thus didn't get the chance to establish a secure relationship with your true self, forget about ever being given the chance! Your self-reflections, your "focus on the self", aiming at healing and becoming more whole, are symptoms of a brain disease.

"Whitfield-Gabrieli found that in the schizophrenia patients, the default system was both hyperactive and hyperconnected during rest, and it remained so as they performed the memory tasks. In other words, the patients were less able than healthy control subjects to suppress the activity of this network during the task. Interestingly, the less the suppression and the greater the connectivity, the worse they performed on the hard memory task, and the more severe their clinical symptoms.

'We think this may reflect an inability of people with schizophrenia to direct mental resources away from internal thoughts and feelings and toward the external world in order to perform difficult tasks,' Whitfield-Gabrieli explained."

And what is, essentially, the big problem with "focussing on the self" and "an inability of people with schizophrenia to direct mental resources away from internal thoughts and feelings and toward the external world in order to perform difficult tasks"?

Yeah well, first of all, you might find out, that you actually were a victim of mistreatment and/or abuse, and secondly, it's unlikely that you will be a good consumer while your focus is directed toward your "internal thoughts and feelings" instead of "toward the external world in order to perform difficult tasks," like consuming...

Philosophizing about yourself, your self, discovering abusive mechanisms in your own upbringing and in the world you're living in, and failing to be a good consumer is undesirable as it is a disease. So, go and get an appointment with a shrink, so you at least can be a good consumer in regard to the mental illness industry and Big Pharma!

Wednesday, 28 January 2009

MFI Ray Update: "Miracle": Today's Forced Shock Postponed 1/28/09

Latest news on Ray's forced electroshock from MindFreedom:

"In the past, Ray has complained about various physical ailments that
he felt should cancel his electroshock. "They would just bring me
into Dr. Coelho's office, and he would say I could have the
electroshock anyway."

This time Ray brought up the fact that about two weeks ago he had
been brought to Regency Hospital by ambulance because of physical
complaints. Lab tests said his ammonia levels were too high, and he
brought this up today.

This time, Ray's electroshock was called off."

Well, he probably will be rescheduled for another shock on February 4th or 11th. So, protest!

Tuesday, 27 January 2009

MFI Ray Alert: Another Forced Shock 1/28/09 - Protest

MindFreedom International - 27 January 2009
Win Human Rights in Mental Health - Please Forward
http://www.mindfreedom.org/ray

   Another involuntary outpatient "maintenance"
   electroshock for Ray Sandford is scheduled
   for tomorrow, 28 January 2009.

   How you may easily and peacefully protest
   from wherever you are.

Unless there is a miracle, it is confirmed that Ray Sandford is
having another involuntary electroshock tomorrow, Wednesday, 28
January 2009, just north of Minneapolis, Minnesota, USA, all funded
by taxpayer dollars.

After more than three dozen forced electroshocks, Ray knows the drill.

Tonight, staff will prepare by removing all of Ray's food from his
mini-fridge in his basement room in a small assisted living home
called "Victory House" in Columbia Heights, Minnesota. This is
because Ray is not supposed to eat for a number of hours before
anesthesia is administered.

Early tomorrow morning Ray will be woken up extra early, and an
escort will bring Ray the 15 miles north on streets near the
Mississippi River to Mercy Hospital, in Coon Rapids, Minnesota.

Ray's mental health workers always manages to find an escort for
Ray's forced electroshocks or psychiatrist visits.

On the other hand, a few days ago Ray said he had to miss a dental
appointment that was supposed to help with his severe teeth problems,
because no attendant could be found that day.

Since Ray's campaign started, an attendant is required to accompany
Ray any time he leaves his home. MindFreedom volunteers have been
banned from visiting. One such visitor, a disability advocate, even
had her employment threatened after Ray's "helpers" filed a complaint
with her employer for bringing Ray to a Minnesota center for
independent living for people with disabilities.

Ray says the waiting room of his electroshock doctor, Bernard M.
Coelho, MD, at Mercy Hospital is often full with about 10 patients
who Ray believes are also scheduled for electroshock. Giving multiple
electroshocks on the same morning is a common practice, sometimes
called a "Shock Mill," and can be very lucrative. Mercy Hospital is
owned by Allina Hospital and Clinics of Minnesota.

Ray will lay in a bed and feel an injection as anesthesia and a
muscle paralyzer are administered to suppress muscle writhing. Ray
says Dr. Coelho will then run electricity through Ray's brain,
inducing a convulsion.

Ray calls the MindFreedom office almost every day, including just
before and just after his forced electroshocks. He says forced shock
is always scary, that it's harming his memory and ability to
concentrate more and more.

Ray is asking us all to peacefully protest his forced electroshock.

The nightmare of involuntary electroshock over the expressed wishes
of the subject has happened regularly since the very first
electroshock in Italy in 1937. But now the atrocity of forced
electroshock has climbed over the institutional walls, and is out in
our towns and cities, in our neighborhoods and homes.

Do not let this become "normal."

Do not wait to see your neighbor escorted out into some early winter
morning for this.

Do not wait for that to be you.

MindFreedom reminds everyone that Ray's campaign is nonviolent. Ray
values his religious principles, and MindFreedom has strict
nonviolence guidelines.

If you communicate with any potential opponent, please be strong but
civil. Anything else can be used against Ray.

~~~~~~~~~~~~~~~

Here are a few easy ways you may protest Ray's electroshock from
wherever you are:

Please forward this alert far and wide.

~~~~~~~~~~~~~~~


   *** ACTION *** ACTION *** ACTION ***

1) Protest to Richard Pettingill, Chief executive officer (CEO) of
Allina Hospital and Clinics:

Ask that your civil verbal protest be placed in Ray Sandford's
medical record using their online web form:

http://www.allina.com/ahs/help.nsf/page/contact

Sample message (your own words are best):

"Dear Mr. Richard Pettingill:

"I request that my message be placed in the permanent medical record
of your patient Ray Sandford, who states that he is receiving ongoing
involuntary electroshock at Mercy Hospital administered by Allina
psychiatrist Bernard M Coelho, MD.

"While you cannot violate the privacy of a patient, I ask that you
respond in general about your policy of allowing involuntary
electroshock over the expressed wishes of the subject.

"Whether or not you feel this is legal, it is unethical, immoral and
traumatic to everyone in mental health care.

"The reason(s) I protest this forced electroshock are:

"My name and contact information: _______"

You may also try to phone Mr. Richard Pettingill's office at
612-262-0601 or 612-262-5000.

You may try to leave a phone message for Dr. Coelho at the above
numbers, or at Mercy at 763-236-6000, but the phone number listed for
him on the Allina web site is now disconnected, even though he still
works there. If you are disconnected, call back.

~~~~~~~~~~~~~~~

2) Bishop Mark Hanson of the Lutheran Church

While the Lutheran Church is not directly in charge of Ray's
electroshock, they are supposed to help "guard" Ray, they are
supposed to care deeply about social justice, yet they are not
supporting Ray's campaign to end his forced electroshock.

The six Minnesota Synods of the "Evangelical Lutheran Church in
America" [ELCA] -- which is the largest Lutheran denomination in the
USA -- own Lutheran Social Service of Minnesota [LSSMN], which is
Ray's court-appointed general guardian.

ELCA and LSSMN have refused to speak out for Ray.

MindFreedom has been in touch with the office of Bishop Mark Hanson,
who leads ELCA. Bishop Hanson asked Ruth Reko, ELCA's Director of
Social Ministry Department, to respond to MFI. Today, Ms. Reko told
MindFreedom, "Supervision is not a concept we enter into with
affiliates like LSSMN or our 299 other social service agency
affiliates."

Please ask Bishop Mark Hanson, to encourage ELCA, its Synods and its
agencies to engage in productive dialogue on human rights and mental
health, especially involuntary electroshock.

Please e-mail to Bishop Mark Hanson here:

bishop@elca.org

Sample message (your own words are best):

"Dear Bishop Hanson:

"Please engage in dialogue about human rights and mental health. I am
not saying ELCA is directly in charge of anyone's forced
electroshock, but ELCA could take a stand against it. In the name of
social justice, ELCA ought to have more oversight over its affiliated
social service agencies that receive taxpayer funds to guard clients.

"Your name and contact info: ___________"

You may also try phoning Bishop Hanson or Ms. Ruth Reko by calling
(773) 380-2700, wait for an attendant.

~~~~~~~~~~~~~~~

3) Engage your local religious organizations in dialogue on human
rights and mental health

Ray has given us all an opportunity to encourage our local faith-
based communities to address the justice issues involved in mental
health care today.

Ask that your local church, synagogue, mosque, etc. find a way to
raise issues about human rights and mental health.

Those in the USA may also seek to engage in dialogue with
participants and leaders in your local ELCA church, which you may
easily locate here:

http://www.elca.org/ELCA/Search/Find-a-Congregation.aspx

~~~~~~~~~~~~~~~

Please act today!

Ray's scheduled electroshocks for this Winter and Spring are below.

Unless there's a miracle.

And maybe you -- and all of us -- are Ray's miracle.

* 18 February 2009

* 4 March 2009

* 25 March 2009

* 8 April 2009

* 29 April 2009

* 13 May 2009

* 3 June 2009

* 17 June 2009

~~~~~~~~~~~~~~~

   Minnesota Nonviolent Protests for Ray

Several individuals and groups in Minnesota have told MindFreedom
they would like to help support and attend peaceful protests on
behalf of Ray in Minnesota.

Several MindFreedom members have even said they are willing to travel
from out of state and from out of the country to participate in
protests.

MindFreedom will broadcast more information as it is received.

~~~~~~~~~~~~~~~

   How to do and learn more on the Ray Campaign

For links to latest news, Ray Campaign blog, to hear the NPR radio
story on Ray, and read Frequently Asked Questions about the "No More
Shock For Ray Campaign" go here:

http://www.mindfreedom.org/ray

Tuesday, 20 January 2009

"I don't believe in hope" - Some thoughts about hope, powerlessness and recovery

There's a lot of talking about hope. Right now, while I write these lines, people all over the world sit glued to their TV, watching their hope, personified in Barack Obama, coming into power. And Obama himself is talking about hope.

Power - one person's power is another one's powerlessness... Just a thought.

Hope is something you have when you identify as powerless, as the victim.

"I don't actually believe in hope. I think, hope is a very very very very bad thing. Because hope, what it really means, what it really is, is a longing for a future condition over which I have no agency." -Derrick Jensen, on Madness Radio, "Environmental Insanity w/Author Derrick Jensen".

Don't hope, that Obama is going to save you, and the world. Don't hope, that the professionals are going to solve your problems for you. Don't hope for the future. Don't hope for recovery. Be. Now.

Monday, 12 January 2009

A song for Gaza

Michael Heart - We Will Not Go Down (Song For Gaza)



Thanks to Gianna for drawing attention to this video.

Sunday, 11 January 2009

still listening

Less known song - I just fell for. Unfortunately it ends a little sudden.

Sinéad O'Connor - still listening

Saturday, 10 January 2009

More misconceptions, some thoughts about delusions, suicide, and about true suicide prevention

The following are two, slightly edited, replies to a discussion at Beyond Meds. - You have to be a member to view the discussion, so, join! - Gianna suggested, I should post here too, and I decided to post both replies.

1. There's this (mis-)conception, that, whenever it just gets "weird" enough, i.e. no longer easy to get, there must be something really really wrong with a person's head, in a biological way. That idea serves as some kind of "explanation" whenever someone's behavior no longer can be understood and explained without effort in relation to the at any time adopted idea of "normal" human behavior as such. It's not an explanation, though. It's explaining away. What we don't understand, we fear. "Beware of the unknown" is a natural reaction/defence and survival mechanism. Especially of prey animals. And humans are both, predators and prey animals. So, we prefer to explain the unknown away, in order to keep it at a safe distance. One of several reasons why the biological model is so attractive to the majority.

The suffering that people in distress experience is caused by a lack of understanding, a lack of self-/consciousness. Partly the suffering is caused by a lack of understanding of themselves, or of what is happening to them, and partly by a lack of understanding from their surroundings. The fact, that people who receive understanding, empathetic, support, that focusses on helping them to understand their experiences while going through a crisis, usually don't suffer to the same extent as those who don't, who only receive drugs to get numbed out on, and maybe even traumatizing, coercive, "treatment" into the bargain, and that the former fare remarkably better in the long run than the latter, proves this.

Somehow, this is where I see a connection to what you say in your post here. Explaining away seems the safest and easiest way out. But it leads inevitably to more and more suffering. In a qualitative as well as in a quantitative sense. We want perfection. We want to be able to (and we are expected to) perfectly fit the mould. And whenever we don't, we panic. And/or those around us do. Something must be profoundly wrong with us. Let's get it fixed, so we can, perfectly, fit the mould again. What we miss in our tireless struggle to be "perfect" - perfect according to the cultural norms and values of our time (!), that is - is that our imperfection is just perfect. In its imperfection. We are not meant to fit a certain mould. We are meant to just be. Real perfection isn't something that can be defined in terms of "different from". Real perfection is the unity of all dualities. Thus, our culture, while desperately chasing what it supposes to be "perfection", actually loses the real perfection more and more out of sight.
_______________

2. Whenever you want to die, if it's that you think the thought, or if it expresses itself as a voice, telling you to kill yourself (hearing voices is nothing but thinking aloud), you don't want to end being as such. You want to end what is, and make something else be. Death is a symbol for transformation. And the language of the unconscious is pure symbol language.

I don't know if you're familiar with it, but the Delphic Oracle from the Greek mythology for instance never answered any question other than in a more or less symbolic way. You got an answer to whatever your question, but you had to figure out the meaning of the answer yourself. Or: you actually gave the answer to your question yourself. Your unconscious, your intuition, did. The Delphic Oracle is the unconscious projected into the world.

Today, we live in a culture that isn't especially conscious of the unconscious. We are not conscious of symbolism in the same way other cultures are/were. What counts is the literal, the hard facts, science, "rational" thought (with "rational thought" being the kind of thought that is easy to get for everyone else, because everyone else thinks in the same, normative, way). Well, and things like traffic signs. But if I were an adviser, let's say of the Danish Prime Minister, he came to ask me my opinion about his campaign for the next election, and I'd say: "Make your own nature, not the advice of others, your guide in life," I'd probably lose my job, and be regarded, at least, a weirdo.

So, the question always is whom or what you really want to die when you contemplate suicide. One thing is for sure: it is not yourself. Your self (it's not a typo) is who/what you really are, and that is being, life. Life can't die. Death is a part of life, not the opposite. And life is transformation: something ends, "dies", something else begins. Every moment. Life is constant arrival and departure. Nothing actually is stable. There can be balance, but not stability. Total stability (like in "mood-stabilizer"), total unchangeableness and predictability, is a myth. And our culture confuses it with "perfection" - and chases it.

Some people want their outer form, i.e. their body, to die. People who suffer from a terminal illness, for instance. What most people in an existential crisis want to die though, is not the outer form either. It's their ego, i.e. who they think they are, and who they think, others think they are. Nevertheless, the ego partly manifests itself in the outer form of someone. That is, the body becomes a symbol for the ego. There you are: instead of letting go of your ego, and become who/what you really are, you interpret a symbol literally and consequently "let go" of your body, and,voilà: suicide. Literally. And since our culture is as unaware of symbolism as it is, chances are, that you won't find much help among this culture's members (in the mh system) to figure it out. Because everybody probably will interpret in the same literal way as your own thoughts do.

I eventually figured it out, because of the "delusion" that the real me wasn't a human being, but, well, something along the lines of a dryade, i.e. a spirit, nameless, ageless, without a history (all that ever had happened in my life, hadn't happened to me but to the body, the true me was caught in), immaterial, although caught in a - material - body. And what the real me wanted, wasn't to die, but to become free - of this body that represented an ego, a self-image, I've never felt less connected to than during crises.

Another aspect of this are "out-of-body-experiences", that usually also just are explained away as meaningless symptom of a brain disease.

Now, it's characteristic for our culture that people identify with their body, their thoughts, their mind, their life-story, their ego. Our culture teaches us to do so. In eastern philosophy though, there's another dimension beyond this formal, material one: the space wherein the formal, material expresses itself. Who/what you really are, your "true self" with Laing, is this space. So, the "delusion" actually wasn't a delusion, but the very truth.

Eventually, I figured, that letting go of the identification with my body, my ego, my thoughts, etc., meant the freedom, I'd thought, I only could gain through letting go of my body itself. A symbolic suicide, not a literal one. Or: an "egocide", not a suicide. That is the end of suffering. - That is not to say, that I don't suffer anymore. Nothing is forever. "Enlightenment" neither. It is extremely tempting to identify with the ego. Especially in a culture that worships the ego as our culture does. I yield to this temptation, time and again, and then I suffer. But existential suffering is human. It's not an illness. On the contrary, the way to "redemption" often goes through an awful lot of suffering. Without suffering, there would be no need to change anything, no need to develop and grow. Thus, existential suffering actually is more like a blessing than the curse, our culture wants to make it be.

As mentioned, usually people don't get any real help. (Since the "helpers" don't have a clue themselves, how could they help anyone to understand, what they haven't even understood themselves?*) The idea, that existential crises would be brain diseases prevents understanding just as the drugs do, whose prescription and administration only and solely is justifiable when what really is a wake-up call is defined a biological illness of the brain.

The trouble is, that the more your true self has been oppressed, the more you've been asked to identify with and as a false self (who/what others want you to be, but who/what you are not), the deeper the split between who/what you really are and this false ego-identification obviously becomes. The deeper the split becomes, the more you will suffer, and the more you suffer, the louder the wake-up calls will be. Whether you get a label of "OCD", "depression", or "schizophrenia" is not a question of suffering from distinctly different conditions. It's a question of the extent to which someone suffers, and the volume of the wake-up calls, they consequently receive. So-called "psychosis" being the loudest possible wake-up call. And they won't cease coming in, the wake-up calls, before you actually listen to them, and do wake up. This is why the drugs have a chronifying effect on crisis. It will inevitably happen again and again, until the day, you understand. And there is no drug strong enough to silence the unconscious. Drugs can't even target the unconscious. All they do is reducing consciousness. The unconscious is almighty and unassailable. You can't fight it and win. All you can do is turning it from being your master into being a tool of yours, by becoming conscious of it.

* It's actually quite funny, that a lack of ability to interpret things in a symbolic way is listed as a "symptom" of "schizophrenia", while the "experts' " ability to recognize a symbol as a symbol when it's staring them right in the face, equals to zero...

Tuesday, 6 January 2009

Misconceptions

I just stopped by one of the blogs, I only visit once in a while - only once in a while, because it's quite bio-oriented, and whenever I need the bio-bs, I prefer to go to "professional" sites, where I can get the real McCoy. Nevertheless, this blog is "alternatively bio-oriented", so, I stop by, once in a while.

And today, on one of my occasional visits, I read the - sad - news, that a family member of the blogger - It's hereditary, right? Yep. Non-genetic, familial inheritance. - got incarcerated and put on a neuroleptic. The blogger reports the family member to be "getting better".

That means, a week or maybe two or so more on the neuroleptic, and the family member should be able to do without it, improved as s/he then would be, thanks to the "medication", right? Nope.

People do not "get better" on these drugs. Generally speaking, there are two kinds of drugs: the ones that help a diseased/injured organism to heal itself by strengthening the organism's own immune system, and the ones that simply mask symptoms, unfortunately often with the result, that the organism is prevented from healing itself, since symptoms usually are the incentive for a healing process to occur.

Psychotropic drugs belong to the latter category. Although some of them, LSD in particular, once were - and by some people still are - believed to belong to the former. I don't think so.

Psychotropic drugs mask and suppress symptoms. It looks as if the drugged individual is getting better. Both to the environment, and often also to the drugged individual him-/herself. While the drugs see to, that the underlying problem, that gave rise to a healing reaction, i.e. to symptoms, thrives and flourishes. Undisturbed. The individual isn't getting better, s/he is actually often getting worse. Underneath the lid, or: behind the mask.

Give someone who's confused, scared, angry, agitated, etc., a neuroleptic, i.e. a major tranquillizer, and, yes, sure, since the major tranquillizer, as the term suggests, reduces their overall vitality, they won't be able to react to their underlying problem with the same amount of confusion, anxiety, anger, agitation, etc, as before. Probably they won't even have the energy left to realize the fact, that the problem still is there, unresolved. This then is called "improvement". How about giving someone who has broken a leg some strong pain killers, that enable them to get on and move about, and call it "improvement"?

"You give someone a tablet, and it shuts them up. It makes them dumb and stupid. People then have the ignorance to think, the medication is making someone better. You're not making someone better. You're making them stupid." -Rufus May in The Doctor Who Hears Voices.

Nothing is more essential to someone going through an existential crisis, and trying to resolve it, and truly "get better", than their ability to work it all out, intellectually, emotionally, spiritually, etc. Someone who broke a leg, and did nothing but pop strong pain killers, while they kept on moving about as if nothing ever happened, would eventually drop dead, from gangrene (make that an intellectual, emotional, spiritual, etc., death in regard to crisis). Or from the pain killers' side effects.