Reading "Lola's story", in fact more like her daughter's story, on Bob Fiddaman's blog yesterday really saddened me.
I came to think of the comment by "CJ" on the NYT-piece "Child's Ordeal Shows Risks of Psychosis Drugs for Young", quoted by Rossa Forbes in her critique on the piece:
"It appears today's parents don't want to take time to examine themselves, their lifestyles, their parenting skills (or lack thereof) to see what might be affecting their child/ren. In addition, they might look to the schools, who have in many instances effectively taken away all outlets for normal childhood rambunctiousness by eliminating recess and phys ed, and requiring these little ones stay at their desks most of the day.
As for parents and physicians 'drugging' infants and preschoolers, well, as they say, you can't cure dumb.
As a nation, we are doing our youngsters a great disservice, substituting drugs for parenting, and placing the blame on others. Parents, take control. Do this by first taking control of yourselves."
Control, or responsibility. It hurts to face one's own inadequacies, mistakes, and dysfunctionality as a parent reflected in one's child reactions to them. And the more extreme the child's reactions, the more it hurts, because the more extreme the dysfunctionality they reflect. So, no doubt that it is a lot more comfortable to believe the misery isn't one's own responsibility, that you're not responsible for neither your own nor your "loved one's" pain. That it is all caused by fate, faulty genes, an imbalanced brain chemistry, nothing you could have done or can do anything about.
Related to this is the belief that the people who hold fate, faulty genes, and an imbalanced brain chemistry responsible are "just misguided", as a friend of mine keeps on telling me whenever I mention this dirty word: responsibility. And I mention it a lot, as the reader of this blog might have noticed. "Have compassion. It is no one's fault. They're just misguided." No one's fault. As in "it's a brain disease, bad genes, it's no one's fault". Or "no one's responsibility".
I recently complained to a friend about somebody's behavior really annoying me, draining me of energy. Like you'd complain to a shrink about your brain diseased child's behavior ruining your delusion of being the perfect parent. "You know," my friend said, "it's actually not that this person is annoying you, draining you of energy. You let her annoy you, and drain you of energy." Touché. Just as people, unless they are completely innocent, and don't know but one single version of a story, aren't misguided, but let themselves be misguided. With pleasure. For their own convenience.
This I wrote in a comment on another post at Rossa's blog:
"Everybody makes mistakes. Many people don't have the guts to admit their mistakes, to neither others, nor, and even less, to themselves. So they blame the suffering their mistakes causes not least themselves on others: "mental illness", and miss out on the opportunity to create transformation and growth for both themselves and their 'loved ones'. "
That's the price you have to pay for running from responsibility. You lose freedom. Also that from suffering. It's like peeing your pants, in the sense the Danes use the expression: at first, it feels nice and warm, but after a short while it gets really, really cold. But, no, you can't cure dumb. And the saddest thing is, when children have to pay for their parents' dumbness.
Showing posts with label consumer mentality. Show all posts
Showing posts with label consumer mentality. Show all posts
Monday, 13 September 2010
Thursday, 15 April 2010
"Went off medication - and did not ask for permission before afterwards" - A note to consumers
As mentioned in my post about why the latest Danish research showing "schizophrenics" to do better off drugs won't change a bit about treatment the title of the article caused some indignation among consumers and survivors, and had somebody start a discussion at a Danish mainstream forum:
"What do you think about this title?
As a mentally ill person, don't you have any right to control your own body?
Comments, anyone?"
Well, of course you don't have any right to control your own body - or anything else - as a mentally ill person.
According to mainstream psychiatry "mentally ill" means brain diseased. Now ask yourself which part of your body, which organ, do you make use of as a tool when you have to estimate a situation, and decide how to react to it? Your shin bone? Your pancreas ("It's like diabetes, you know.")? I suppose not. Probably you'll make use of your brain.
I recently watched an interesting documentary about the Mary Celeste , the "archetypal ghost ship", according to Wikipedia. Which the Wikipedia entry, as far as I can see, doesn't tell is that it recently has become known that the Mary Celeste left New York for Genoa, Italy, with only one single chronometer on board. Usually an ocean-going ship of her size would not go anywhere without several, at least three or four, chronometers on board. Turns out, the one single chronometer on board of the Mary Celeste is defective, which of course renders it impossible for her captain, Benjamin Briggs, to calculate the position of the ship accurately. This, in addition to the Mary Celeste taking in water after having been through some rough weather, probably has led to his decision to abandon the ship. A very bad, in fact for him, his family and the rest of the crew fatal, decision made on the basis of inaccurate measurements (make that an inaccurate estimation) of the ship's position (make that any given situation), carried out with a defective chronometer (make that a diseased brain).
The situation would have been different had Briggs known that the chronometer was defective, in which way, and to which extent. He then could have taken the margin of error into account, and calculated the ship's position more accurately - and he maybe wouldn't have panicked and abandoned the ship, as she, although she was taking in some water, easily could have made it to her destination from where she was abandoned.
However, in the latter situation, the only correction tool at Briggs' disposal would have been his brain. And if it is your brain that is the defective chronometer, it is self-evident that you can't use it as a tool to correct itself, and expect accurate calculations. So, to the extent someone accepts the biological model and identifies as "mentally ill" they accept their tool for decision making to be defective, and will consequently have to accept that their estimation of any given situation may be inaccurate rendering their decisions potentially disastrous, maybe even fatal. They will have to accept being defined as incapacitated in regard to everything that requires brain activity. You can't have your cake and eat it. This is either-or, not both-and. Either you identify as "mentally ill", and you will have to give up on your freedoms and rights as a human being, or you don't, and you will have to take responsibility for yourself. For all that you do.
You can't righteously claim control of your body, for instance in regard to whether you want to reduce the dosage and number of psych drugs you're on, or maybe even whether to go entirely off of them, you can't righteously claim control of anything in your life, and at the same time whenever it suits you hold on to the idea that you can't be held responsible for any of your decisions that turn out bad, because you're "mentally ill". You can't even righteously feel offended by a title like the quoted one. It is only logic that you will have to leave all decision making to others, and ask for permission, no matter what you'd like to do if all you've got is a defective chronometer, a broken brain.
This by the way also applies to those who do not necessarily identify as suffering from a biological brain disease, but still think of their mind as being ill, as that which constitutes your mind are your thoughts and feelings, and as it is these you make use of in your decision making.
So, you may want to make up your mind. Do you want freedom, or do you want to be "mentally ill"?
"What do you think about this title?
As a mentally ill person, don't you have any right to control your own body?
Comments, anyone?"
Well, of course you don't have any right to control your own body - or anything else - as a mentally ill person.
According to mainstream psychiatry "mentally ill" means brain diseased. Now ask yourself which part of your body, which organ, do you make use of as a tool when you have to estimate a situation, and decide how to react to it? Your shin bone? Your pancreas ("It's like diabetes, you know.")? I suppose not. Probably you'll make use of your brain.
I recently watched an interesting documentary about the Mary Celeste , the "archetypal ghost ship", according to Wikipedia. Which the Wikipedia entry, as far as I can see, doesn't tell is that it recently has become known that the Mary Celeste left New York for Genoa, Italy, with only one single chronometer on board. Usually an ocean-going ship of her size would not go anywhere without several, at least three or four, chronometers on board. Turns out, the one single chronometer on board of the Mary Celeste is defective, which of course renders it impossible for her captain, Benjamin Briggs, to calculate the position of the ship accurately. This, in addition to the Mary Celeste taking in water after having been through some rough weather, probably has led to his decision to abandon the ship. A very bad, in fact for him, his family and the rest of the crew fatal, decision made on the basis of inaccurate measurements (make that an inaccurate estimation) of the ship's position (make that any given situation), carried out with a defective chronometer (make that a diseased brain). The situation would have been different had Briggs known that the chronometer was defective, in which way, and to which extent. He then could have taken the margin of error into account, and calculated the ship's position more accurately - and he maybe wouldn't have panicked and abandoned the ship, as she, although she was taking in some water, easily could have made it to her destination from where she was abandoned.
However, in the latter situation, the only correction tool at Briggs' disposal would have been his brain. And if it is your brain that is the defective chronometer, it is self-evident that you can't use it as a tool to correct itself, and expect accurate calculations. So, to the extent someone accepts the biological model and identifies as "mentally ill" they accept their tool for decision making to be defective, and will consequently have to accept that their estimation of any given situation may be inaccurate rendering their decisions potentially disastrous, maybe even fatal. They will have to accept being defined as incapacitated in regard to everything that requires brain activity. You can't have your cake and eat it. This is either-or, not both-and. Either you identify as "mentally ill", and you will have to give up on your freedoms and rights as a human being, or you don't, and you will have to take responsibility for yourself. For all that you do.
You can't righteously claim control of your body, for instance in regard to whether you want to reduce the dosage and number of psych drugs you're on, or maybe even whether to go entirely off of them, you can't righteously claim control of anything in your life, and at the same time whenever it suits you hold on to the idea that you can't be held responsible for any of your decisions that turn out bad, because you're "mentally ill". You can't even righteously feel offended by a title like the quoted one. It is only logic that you will have to leave all decision making to others, and ask for permission, no matter what you'd like to do if all you've got is a defective chronometer, a broken brain.
This by the way also applies to those who do not necessarily identify as suffering from a biological brain disease, but still think of their mind as being ill, as that which constitutes your mind are your thoughts and feelings, and as it is these you make use of in your decision making.
So, you may want to make up your mind. Do you want freedom, or do you want to be "mentally ill"?
Friday, 9 April 2010
Why Merete Nordentoft's recent research showing "schizophrenics" to do better without drugs won't change a thing about treatment
Well, in short, because the 19% of study participants reported to be "fully recovered" aren't really fully recovered, but rehabilitated.
A follow-up article in the Danish journal Dagens Medicin portrays Mai Pedersen, a 30-year-old with a high school exam (it's the smart ones who do best, remember?), and with some of the most loving and supportive parents imaginable (it's the ones with a truly idyllic family background who do best, remember?), who was labelled "schizophrenic" seven years ago, put into OPUS (Merete Nordentoft's early intervention program) and on drugs, of course, both neuroleptics and "anti-depressants", and who decided to go off the drugs some time ago. The latter actually, and this is the really disturbing part as the article's title, which translates into "Went off medication - and didn't ask for permission before afterwards", indicates, without asking permission from her shrink. Imagine! She didn't ask her shrink before tapering off the drugs!! How incredibly cheeky!*)
Although Mai Pedersen doesn't take any drugs today, she is "symptom-free". So, according to the article, Mai Pedersen is "fully recovered". But is she really? Mai Pedersen has an enemy. The enemy is stress. And it still has that much power over her as to have her weigh everything she does in regard to how the enemy "stress" probably will react to it. Mai Pedersen has, certainly thanks to CBT-rat training (and yes, it may well make training progress come more swiftly and be more lasting if the rat has some brains), and thanks to her wonderfully supportive parents (yes, relatives can play a decisive role when it comes to "insight" and "compliance", the better they manage to hide their own dysfunctionality behind a facade of pure family idyl, the more of a "support" - for biopsychiatric "treatment" - they will be) learned to live as a victim of "schizophrenia", a slave of a chronic brain disease. She has accepted that nothing ever will come as easy to her as it does to her "normal" friends and acquaintances, that she will have to make sacrifices to the "illness" for the rest of her life, that the "illness" dictates what she can and can't do, and that she maybe even will end up in hospital again, and again, and again... - And btw, take a look at the photograph at the top of the article, and note how beautifully it communicates the heavy burden of suffering from "schizophrenia".
Mai Pedersen succeeded in becoming a licensed psychomotrician, and is a member of the OPUS-panel, which "tries to spread information in the community about the many success stories that show also patients with schizophrenia to be able to live rewarding lives." A real success story. Or, as Mai Pedersen puts it herself, "a lousy Danielle Steele novel". Indeed!
Well well, here it is that I ask, how about a panel to try and spread some information in the community about the many real success stories that show labelled people to be able to overcome their crisis, and live a life without "schizophrenia", without constantly having to be on their guard against an enemy called "stress", without massive limitations and sacrifices, and without having the spectre of returning "psychosis" and re-hospitalization hanging over their heads?? How about a panel to try and spread some information in the community about real recovery, real freedom, to be possible??
But alas, such a panel would probably not consist of a bunch of happy and grateful OPUS-patients (and Mai Pedersen is still a patient today, she still sees her shrink on a regular basis, apropos of "fully recovered"...), a bunch of Elyn Sakses, who identify as being "mentally ill", as suffering from a chronic brain disease by the name of "schizophrenia". So, it is rather unlikely that we will see such a panel initiated by the establishment anytime in the foreseeable future. Just as a paradigm shift in the definition and treatment of crisis is unlikely to happen as long as the Mai Pedersens and Elyn Sakses of this world aren't only made slaves of an alleged illness, but also, and even more important, of a system, that (ab-)uses them big time to sell its hopeless messages and harmful "treatment" to the community.
To get back to Merete Nordentoft's research, the rate of 19% "fully recovered" participants is obviously an error, resulting from an erroneous concept of "full recovery". The true figure probably is closer to 0%, as the study apparently was not designed to include participants, who dropped out of "treatment", but seems to exclusively have concentrated on individuals, who stayed in contact with the mh system throughout the entire five years during which they were monitored. If this is the case, and I have a very strong hunch that it is, not least because the article in Dagens Medicin otherwise probably would have portrayed someone else instead of Mai Pedersen, real full recovery of course is excluded in advance from figuring in the results as a possible outcome. I suppose, this is what is called "biased" then.
A high school exam, the ability to think clearly, and a supportive network, family or other, are without doubt useful in the recovery process. But there is one more important thing , maybe the most important of them all, in terms of recovery that isn't mentioned anywhere in context with Merete Nordentoft's research, and that thing is what Al Siebert termed "resilience". The ability to "resile", or resist (without breaking your neck over it), for instance the massive indoctrination labelled people usually face in the mh system. The ability to preserve one's integrity in an environment designed to strip you entirely of it. Mai Pedersen had the high school exam, but unfortunately she didn't have the amount of resilience necessary to achieve real full recovery, and I also wonder if she would have had her family's support in case she had had the necessary amount of resilience, and had chosen to opt for freedom, instead of for slavery.
_______________
*) The title of the article caused some indignation among consumers/survivors, and gave rise to an interesting discussion at a Danish mainstream forum. - Of course I simply had to set the cat among the pigeons... :D - I will write about my thoughts on the matter in a future post here.
A follow-up article in the Danish journal Dagens Medicin portrays Mai Pedersen, a 30-year-old with a high school exam (it's the smart ones who do best, remember?), and with some of the most loving and supportive parents imaginable (it's the ones with a truly idyllic family background who do best, remember?), who was labelled "schizophrenic" seven years ago, put into OPUS (Merete Nordentoft's early intervention program) and on drugs, of course, both neuroleptics and "anti-depressants", and who decided to go off the drugs some time ago. The latter actually, and this is the really disturbing part as the article's title, which translates into "Went off medication - and didn't ask for permission before afterwards", indicates, without asking permission from her shrink. Imagine! She didn't ask her shrink before tapering off the drugs!! How incredibly cheeky!*)
Although Mai Pedersen doesn't take any drugs today, she is "symptom-free". So, according to the article, Mai Pedersen is "fully recovered". But is she really? Mai Pedersen has an enemy. The enemy is stress. And it still has that much power over her as to have her weigh everything she does in regard to how the enemy "stress" probably will react to it. Mai Pedersen has, certainly thanks to CBT-rat training (and yes, it may well make training progress come more swiftly and be more lasting if the rat has some brains), and thanks to her wonderfully supportive parents (yes, relatives can play a decisive role when it comes to "insight" and "compliance", the better they manage to hide their own dysfunctionality behind a facade of pure family idyl, the more of a "support" - for biopsychiatric "treatment" - they will be) learned to live as a victim of "schizophrenia", a slave of a chronic brain disease. She has accepted that nothing ever will come as easy to her as it does to her "normal" friends and acquaintances, that she will have to make sacrifices to the "illness" for the rest of her life, that the "illness" dictates what she can and can't do, and that she maybe even will end up in hospital again, and again, and again... - And btw, take a look at the photograph at the top of the article, and note how beautifully it communicates the heavy burden of suffering from "schizophrenia".
Mai Pedersen succeeded in becoming a licensed psychomotrician, and is a member of the OPUS-panel, which "tries to spread information in the community about the many success stories that show also patients with schizophrenia to be able to live rewarding lives." A real success story. Or, as Mai Pedersen puts it herself, "a lousy Danielle Steele novel". Indeed!
Well well, here it is that I ask, how about a panel to try and spread some information in the community about the many real success stories that show labelled people to be able to overcome their crisis, and live a life without "schizophrenia", without constantly having to be on their guard against an enemy called "stress", without massive limitations and sacrifices, and without having the spectre of returning "psychosis" and re-hospitalization hanging over their heads?? How about a panel to try and spread some information in the community about real recovery, real freedom, to be possible??
But alas, such a panel would probably not consist of a bunch of happy and grateful OPUS-patients (and Mai Pedersen is still a patient today, she still sees her shrink on a regular basis, apropos of "fully recovered"...), a bunch of Elyn Sakses, who identify as being "mentally ill", as suffering from a chronic brain disease by the name of "schizophrenia". So, it is rather unlikely that we will see such a panel initiated by the establishment anytime in the foreseeable future. Just as a paradigm shift in the definition and treatment of crisis is unlikely to happen as long as the Mai Pedersens and Elyn Sakses of this world aren't only made slaves of an alleged illness, but also, and even more important, of a system, that (ab-)uses them big time to sell its hopeless messages and harmful "treatment" to the community.
To get back to Merete Nordentoft's research, the rate of 19% "fully recovered" participants is obviously an error, resulting from an erroneous concept of "full recovery". The true figure probably is closer to 0%, as the study apparently was not designed to include participants, who dropped out of "treatment", but seems to exclusively have concentrated on individuals, who stayed in contact with the mh system throughout the entire five years during which they were monitored. If this is the case, and I have a very strong hunch that it is, not least because the article in Dagens Medicin otherwise probably would have portrayed someone else instead of Mai Pedersen, real full recovery of course is excluded in advance from figuring in the results as a possible outcome. I suppose, this is what is called "biased" then.
A high school exam, the ability to think clearly, and a supportive network, family or other, are without doubt useful in the recovery process. But there is one more important thing , maybe the most important of them all, in terms of recovery that isn't mentioned anywhere in context with Merete Nordentoft's research, and that thing is what Al Siebert termed "resilience". The ability to "resile", or resist (without breaking your neck over it), for instance the massive indoctrination labelled people usually face in the mh system. The ability to preserve one's integrity in an environment designed to strip you entirely of it. Mai Pedersen had the high school exam, but unfortunately she didn't have the amount of resilience necessary to achieve real full recovery, and I also wonder if she would have had her family's support in case she had had the necessary amount of resilience, and had chosen to opt for freedom, instead of for slavery.
_______________
*) The title of the article caused some indignation among consumers/survivors, and gave rise to an interesting discussion at a Danish mainstream forum. - Of course I simply had to set the cat among the pigeons... :D - I will write about my thoughts on the matter in a future post here.
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