"Went off medication - and did not ask for permission before afterwards" - A note to consumers

As mentioned in my post about why the latest Danish research showing "schizophrenics" to do better off drugs won't change a bit about treatment the title of the article caused some indignation among consumers and survivors, and had somebody start a discussion at a Danish mainstream forum:

"What do you think about this title?
As a mentally ill person, don't you have any right to control your own body?
Comments, anyone?"

Well, of course you don't have any right to control your own body - or anything else - as a mentally ill person.

According to mainstream psychiatry "mentally ill" means brain diseased. Now ask yourself which part of your body, which organ, do you make use of as a tool when you have to estimate a situation, and decide how to react to it? Your shin bone? Your pancreas ("It's like diabetes, you know.")? I suppose not. Probably you'll make use of your brain.

I recently watched an interesting documentary about the Mary Celeste , the "archetypal ghost ship", according to Wikipedia. Which the Wikipedia entry, as far as I can see, doesn't tell is that it recently has become known that the Mary Celeste left New York for Genoa, Italy, with only one single chronometer on board. Usually an ocean-going ship of her size would not go anywhere without several, at least three or four, chronometers on board. Turns out, the one single chronometer on board of the Mary Celeste is defective, which of course renders it impossible for her captain, Benjamin Briggs, to calculate the position of the ship accurately. This, in addition to the Mary Celeste taking in water after having been through some rough weather, probably has led to his decision to abandon the ship. A very bad, in fact for him, his family and the rest of the crew fatal, decision made on the basis of inaccurate measurements (make that an inaccurate estimation) of the ship's position (make that any given situation), carried out with a defective chronometer (make that a diseased brain).

The situation would have been different had Briggs known that the chronometer was defective, in which way, and to which extent. He then could have taken the margin of error into account, and calculated the ship's position more accurately - and he maybe wouldn't have panicked and abandoned the ship, as she, although she was taking in some water, easily could have made it to her destination from where she was abandoned.

However, in the latter situation, the only correction tool at Briggs' disposal would have been his brain. And if it is your brain that is the defective chronometer, it is self-evident that you can't use it as a tool to correct itself, and expect accurate calculations. So, to the extent someone accepts the biological model and identifies as "mentally ill" they accept their tool for decision making to be defective, and will consequently have to accept that their estimation of any given situation may be inaccurate rendering their decisions potentially disastrous, maybe even fatal. They will have to accept being defined as incapacitated in regard to everything that requires brain activity. You can't have your cake and eat it. This is either-or, not both-and. Either you identify as "mentally ill", and you will have to give up on your freedoms and rights as a human being, or you don't, and you will have to take responsibility for yourself. For all that you do.

You can't righteously claim control of your body, for instance in regard to whether you want to reduce the dosage and number of psych drugs you're on, or maybe even whether to go entirely off of them, you can't righteously claim control of anything in your life, and at the same time whenever it suits you hold on to the idea that you can't be held responsible for any of your decisions that turn out bad, because you're "mentally ill". You can't even righteously feel offended by a title like the quoted one. It is only logic that you will have to leave all decision making to others, and ask for permission, no matter what you'd like to do if all you've got is a defective chronometer, a broken brain.

This by the way also applies to those who do not necessarily identify as suffering from a biological brain disease, but still think of their mind as being ill, as that which constitutes your mind are your thoughts and feelings, and as it is these you make use of in your decision making.

So, you may want to make up your mind. Do you want freedom, or do you want to be "mentally ill"?

More about Merete Nordentoft's surprising (NOT!) research results on "schizophrenia"

The main emphasis of the article, whose title translates into: "High school certificate a good weapon against schizophrenia", is on the role of education in terms of recovery from so-called "schizophrenia".

The researchers followed 547 people labelled with "schizophrenia" over a 5-year-period.

Results: 19% achieved full recovery, most of them, as mentioned in my previous post, were not "treatment compliant", respectively didn't use psych drugs at all. 15% achieved significant improvement. 53% didn't achieve lasting improvement, but are able to live independently, and without longer hospitalizations. 13% are dependent on assisted housing, or need long-term hospitalization.

Among those who achieved full recovery or significant improvement, a higher education is prevalent, most of them are women, and most of them come from a family background with both parents living together. On the other hand, "negative symptoms" like social withdrawal and passivity indicate a less favorable outcome.

Education: the so far only comment on the article at Dagens Medicin (the journal only allows professionals to comment... ) concludes that a higher education equals to a higher IQ which equals to more benefit from CBT - "something we've known for a long time".

In my opinion, a higher education equals to the ability to search for information on one's own, if necessary - and when it comes to "mental illness" it is necessary, since true information in Danish is thin, to put it mildly - also information in foreign languages like English. Information that may have the individual choose to, by and large, do without neuroleptics, that may have him/her question the (Danish) mh system's messages about a chronic, biological brain disease, and that may have him/her investigate into alternative views of the experience. A higher education often equals to a stronger belief in one's own intellectual capacities, "intellectual self-reliance", so to speak, and thus to less blind confidence in others' - the "experts' - authority.

A higher education often provides tools to think analytically, critically and independently. Invaluable tools when it comes to finding meaning with one's experience, and become an expert on one's own behalf: "I know what's good for me." It's called empowerment, and it's decisive in the recovery process.

Drugs: well, I'd say, it's self-evident that substances which interfere with and reduce cognition, memory, self-/consciousness, etc., which in fact often render researching, googling, reading and understanding unsurmountable challenges, are not helpful in the process of resolving crisis.

Women: in general, women are more socializing than men, and don't have the same reservations against opening up and talking about personal problems. And if people who experience crisis need anything, it is the possibility to communicate their experience to someone they can trust unconditionally.

Family: a somewhat well-functioning family can be a valuable resource of support. Especially if family members are minded to resolve problems rather than to just brush them under the carpet, or run from them.

It doesn't look like the researchers have done much else than gathered statistics about "symptoms" experienced, hospitalizations, education, family background, and whatever else can be observed from the outside. Also this study seems to be a shining example of the lack of empiricism in psychiatric "research" in general. Participants obviously were not asked what in detail was helpful for their individual recovery. As a result, the researchers stand with a bunch of data they, due to their preconceived idea of the nature of "schizophrenia" - it's still referred to as an "illness", of course -, and the resulting preconceived idea of what kind of treatment is indicated, don't really know what to make of.

Probably, their reasoning will not go beyond conclusions like the one mentioned above, that CBT is the decisive factor, while they just as probably will be unlikely to admit the quite logic causality between "treatment" with consciousness reducing, and in the long run brain damaging substances and long-term outcomes. Actually, the article explicitly states, that "antipsychotics" are effective treatment for "psychosis": "Don't draw the 'wrong' conclusions from the research results! Take your meds!" Also, an undertone can be traced in the article that clearly emphasizes that "full recovery" doesn't mean "cured". "Schizophrenia" still is a chronic brain disease: "You're still ill! Don't you dare to believe anything else! You're only as lucky as to be in remission!" So, it is unlikely that this study will change anything about how "schizophrenia" is perceived by the "experts", or how it is being treated. Concerning the fact that most of the fully recovered participants either went off neuroleptics, or never used them, this is probably not interpreted as a precondition for their recovery ("remission"), but rather as a result of it. Just as the article doesn't mention the connection between "negative symptoms" like social withdrawal and passivity on the one hand, and the these "negative symptoms" increasing effects of neuroleptic drugs on the other, with one word.

If at all this study makes it to one of the major journals in the field, I suspect it will suffer the same fate as other long-term outcome studies, and soon be buried in the archives, under a load of crap like Thomas Werge's eugenic "research", that allegedly found the genetic cause of "schizophrenia" to be chromosome mutations which are found in 60 - 90% of the general population... (Can't recall whether I wrote about it here, but well, now you know: 60 - 90% of the general population are genetically predisposed to develop "schizophrenia". In other words: to be a human being predisposes you for "schizophrenia". LMAO.)

BTW: the article calls OPUS a "psycho-social" project. Not by any stretch of imagination can I find much "psycho-social" about a project that explicitly promotes " - psycho education with weight on a biological model (guilt reducing)", and "antipsychotic medical treatment" as "indicated" for "most of the patients".

"... I'd rather have my own suffering than someone else's solution."

Yesterday, Ron Unger posted a link to an absolutely amazing article by British novelist Jeanette Winterson on his blog.

A few quotes:

"My creativity pulled me out of a hopeless childhood, and gave my life meaning and shape. But I have always had various forms of manic depression, (just can't bring myself to call it "bipolar"— whoever invented that dismal term must have been uni-polar—a condition I define as being permanently tethered to the banal)."

"...I'd rather have my own suffering than someone else's solution."

"Wounding—real or symbolic—is both mark and marker. It is an opening in the self, painful but transformative."

"We know from 100 years of psychoanalytic investigation that an early trauma, often buried or unavailable to consciousness, is the motif that plays through our lives. We meet it again and again in different disguises. We are wounded again in the same place. This doesn't turn us into victims. Rather, we are people in search of a transformation of the real."

Well, I could go on and on... Go read the whole article "In Praise of The Crack-Up" at, and this is amazing, this too, the Wall Street Journal's website.

Awesome lecture by Will Hall

Gianna has posted Will Hall's lecture "Coming off medication; a harm reduction approach" on her blog. Will held the lecture this afternoon at First World Congress Hearing Voices in Maastricht, Netherlands. Click the link at the top of this post to get to Gianna's blog where you can listen to it.