Accutane vs. Geodon. More on double standards

I watched this vid the other day, 1:43 into it. That was all I needed to see, or hear: "None of us would like it , if one of our children were to die at a young age, especially if it was for taking a medication that was for the treatment of pimples." -Doug Bremner.

Right. Certainly, none of us would like that. And sure as hell it was about time, and the only right thing to happen, when Accutane was pulled from the market last year. And although Hoffmann - LaRoche claimed other reasons to have prompted the decision to pull Accutane, concerns about the safety of the drug, also, and not least, voiced by Doug Bremner, without doubt were crucial to this decision. So, hats off to Doug Bremner's courage!

Anyhow, here's what I simply can't get my head around: if it is so outrageous as, among others, Doug Bremner thinks it is, and as it, indeed, is, that a drug that potentially causes depression and suicidal ideation/behavior as a side effect is used to treat acne, how come it is fully acceptable that drugs, medical treatments, with the side effect profile of Geodon are used to treat what isn't even scientifically proven to be an illness, a medical condition, at all? How come it isn't only acceptable, but apparently even desirable, if I understand Doug Bremner correctly - and it seems I do, since he didn't protest my comparison of his Mark Becker post to Fuller Torrey/TAC propaganda - to be able to force people to take these drugs?

So far, in Denmark there has been filed one complaint about Zyprexa causing diabetes. The complaint was dismissed. Explanation: "schizophrenia" is a far more severe disease than diabetes. So, if you suffer from "schizophrenia", you'll have to live with a side effect of the severity of diabetes. In fact, "schizophrenia", according to the "experts", such as Doug Bremner, must be worse than death. Because, unless you get run over by a bus and killed, or something along those lines, you, eventually, will die from taking drugs like Geodon or Zyprexa. On average, about 25 years earlier than you would have died not taking these drugs. So did the person who filed the complaint here in Denmark, who died from complications related to diabetes, which he had developed thanks to taking Zyprexa.

So, what we've got are drugs for the treatment of something that is not scientifically proven to be a disease, that actually, according to the scientific, psychiatric (!), research that has shown non-medical approaches like Soteria or Open Dialog to produce recovery rates of about 85%, vs. the drugs' 0%, with much greater probability is an emotional, existential problem, than that it is a medical one, that do not only have death as a possible, but, if taken long-term, as advocated by Doug Bremner and most of his colleagues, certain side effect. That is, looking at the scientific facts, any risk-benefit analysis of these drugs clearly tells us that the risks are way out of proportion compared to the benefits. Far more out of proportion than for a drug like Accutane.

Still, there is a public outcry, not least from Doug Bremner himself, for a ban of a drug like Accutane, while there, at the same time, is a just as loud, if not louder, public outcry, not least from Doug Bremner himself, in favor of forced "treatment" with a drug like Geodon.

If it was for Big pHARMa's profit to be at stake alone, I bet, someone like Doug Bremner would be one of the first to go for a ban of neuroleptics. But there is more, much more, at stake than Big pHARMa's profit when it comes to psych drugs. Pimples, acne, don't challenge society's status quo, they don't challenge the collective mass-psychosis that is called modern western civilization to the same extent as existential crises do. Indeed, society, Doug Bremner included, doesn't fear anything, not even death, and not even "if one of our children were to die at a young age", as much as it fears "schizophrenia", that is the confrontation with its own dysfunctionality. "Schizophrenia" begins where the courage to face oneself ends.

"My pain is worse than yours!" Some reflections on PTSD vs. "schizophrenia", on the trivialization of trauma, and on responsibility

A commenter, Stephany, at Doug Bremner's blog seems to think that I engage in what she calls the " 'my pain is worse than yours' BS". In my previous post I pointed out that what I did, when I wrote about his loss, was that I looked at his experience from the perspective that most of his colleagues, and obviously, when it comes to others than himself, also Doug Bremner himself, employ. I looked at it from Doug Bremner's own, biopsychiatric perspective. 

If you have listened to the Madness Radio interview with Jacqui Dillon, you may have noticed that she mentions having been denied the possibility to talk about her life experiences not only in her assessment interview, but also throughout her entire stay in the psychiatric system. Whenever she tried to bring up the matter, her "care"givers in the system told her to focus on the present and future, not on the past. I myself hear it again and again, that people are told "You must forgive!" -- Forgive what, by the way?? If there's no trauma, and this is what these people also are told, over and over again, and at the very same time, that whatever pain they are experiencing it certainly isn't caused by any trauma, but by this mysterious, biological brain disease called "schizophrenia", I'd think, there can be nothing to forgive. Hm, strange. But well, logic and psychiatry - they don't really go that well together. -- So, the biopsychiatric approach obviously implies that, no matter what you have experienced in your life, it can impossibly have been worse than to have caused you to react to it with what then earns you a label of PTSD. As soon as your reaction exceeds just slightly whatever standards "experts" like Doug Bremner -- on the basis of their personal, on the at any time prevailing cultural norms and values, not on that of any scientific evidence , founded, convictions -- have put down for a label of PTSD, the label you receive from these "experts" will likely be that of "schizophrenia".  And as soon as you have received that label, instead of the PTSD-one, poof!, all the trauma you ever might have experienced didn't happen but inside your own, diseased mind, it's all in your head.  And even if any of it happened, it wasn't worse than that you just should forgive and forget all about it. 


While, as we all know, telling your story, talking about what happened to you, making sense of it -- which is what Doug Bremner for instance tries to do in writing about his mother's death -- is an essential step on the road to recovery for someone who suffers from PTSD, telling what the "experts" choose to believe must be a mere fantasy, talking about what they choose to believe never happened to you, isn't allowed, as it only would upset them you, make you a threat to their scheme of things "worse", in case they have chosen that you suffer from "schizophrenia".  


So, how convenient that there are no biological tests for neither PTSD nor any other "mental illness", that it is more or less entirely up to the personal preferences of your shrink, mainly depending on how much pain s/he is able to recognize and validate without terror taking over, and having him/her turn blind and deaf, and only looking to shut you up, now!, which label you'll receive from him/her. And, pop!, before you know where you are, you're no longer a traumatized human being, but a brain diseased freak, who risks to have his/her mug shot appear on Doug Bremner's blog, accompanied by a Fuller Torrey-TAC-worthy call for you to be stripped of whatever, if any, human rights you might have left. What a truly sensitive, the human being and his/her pain respecting and validating approach!

Trauma, pain, suffering cannot be measured and weighed in the same way as blood pressure or, well, insulin. An experience is just as traumatic as the person, who experiences it, experiences it to be traumatic. Indeed, it's all in your head. And no matter whether it's called PTSD or "schizophrenia", or whatever else.


So, while I, in applying the biopsychiatric perspective, could claim that there are innumerable four and a half-year-olds in this world, who experience the death of their mother without being traumatized by it (another one of biopsychiatry's favorites: "Other people have experienced the same you have without becoming psychotic/schizophrenic. So, stop whining about your past, and get on with your life [as the chronically brain diseased freak we reserve for ourselves the right to define you to be]!"), thus trivializing Doug Bremner's pain, I for one prefer to see him, his reaction, and to draw my conclusions about the "size" of his pain, the extent of trauma he has experienced from what I see there. The in my opinion only valid "measurement" for trauma, pain and suffering: the individual's individual experience of and reaction to it.

Personally, I didn't lose neither my mother nor my father as a four and a half-year-old, I wasn't sexually abused like Jacqui Dillon, I wasn't battered, screamed and shouted at, or physically neglected in any way. My parents had no financial problems, and there was no fighting, or drinking, or anything like that going on at our house. We were the perfect upper middle class family. Nothing "dramatic" ever happened before I was about 13 years old, and what happened from then on until my father's death four years later happens in the best of families, it happens all the time, and most of the children who experience it do not end up "psychotic"/"schizophrenic". "So, where's the trauma?" I can hear the Doug Bremners of this world ask. And, until 6 years ago, I wouldn't have been able to answer him other than with what he would have interpreted to be the "delusions" and "hallucinations" of a chronically brain diseased, genetically defective freak, because he's too afraid to see anything, but what our culture has decided simply is too obvious to be covered up, because all he would have been able to see was the perfect upper middle class family, in whose bosom I'd experienced the perfectly happy, safe and protected upper middle class childhood that clearly didn't involve any trauma at all.

So, why would I, who cannot even play the "I lost my mother when I was only four and a half years old"-card, want to trivialize Doug Bremner's grief, and why on earth would I, who hasn't experienced anything of what our culture recognizes as "trauma", want to engage in the "my pain is worse than yours" BS -- and it is BS, yes -- Stephany?? In fact, I'm the first to stand up and speak out against the ongoing trivialization of people's pain and suffering, that biopsychiatry so happily engages in -- that is what I do in criticizing Doug Bremner's post about Mark Becker -- as well as against the "my pain is worse than yours" BS that I witness everywhere among consumers, where it, characteristically enough, finds its most pronounced expression in the discrimination against, and demonization of "the schizophrenics", and not least in the invalidation of these people's trauma and pain as "delusions", perpetrated by people with all  kinds of other psych labels, not least those who claim to have been misdiagnozed as "schizophrenic" when in reality they were traumatized. As if "schizophrenia" and having been traumatized were opposites. Well well, also the discriminated against need their scapegoats to pass the discrimination, the violence, on to. And of course it is the most natural and safe thing to pass it on to those, who are assigned the place at the bottom of the pecking order by the almighty authority of biopsychiatry: "the schizophrenics". Of whom I am one of, traumatized, recovered, but still, never misdiagnozed.


I recommend a look at my own story, before anyone next time jumps to conclusions, and insinuates that I would trivialize anyone's trauma, and/or engage in the "my pain is worse than yours" BS.


As for the at Doug Bremner's blog's comment section also present accusation against me that I would engage in a simplistic "blame the parents" approach: if you call holding the people, who according to their own perception of themselves (!) are responsible, grown-up human beings, responsible is a simplistic "blame the parents" approach, then, yes, then I do engage in it. However, the accusation itself is a simplistic, cheap (!) attempt to escape having to take responsibility, and I think, everybody who makes use of it knows this very well. If you don't know it, I recommend reading Laing again (I suppose, you have read him before you went on to dismiss of his ideas?!), as you obviously got him all wrong.


"With rare exceptions, I think parents do their best. They try. But there are a lot of ways in which they can go astray." -Loren Mosher

Is it really so much more painful and terrifying for you to face your own imperfection as parents, your own humanity, than to witness your children lose their mind over your inability to face it?

The OPUS Trials - comparing drug "treatment" to drug "treatment"

Here you can find an overview in English over the research I referred to in both yesterday's post and this one from March 16.

While you scroll down to the "Funding" section at the bottom - and I'll get back to why you might want to have a look at this section -, don't be fooled by the charts. It's the figures that count, not the bars or lines. And the figures tell us that OPUS indeed works significantly better than "treatment" as usual. Well, at least in regard to "treatment adherence", "compliance" that is, and in regard to indoctrinating parents/family - which, on its part, certainly contributes to the higher "treatment adherence" achieved in an OPUS-setting compared to "treatment" as usual. Otherwise, thus also in regard to outcomes, differences are rather insignificant.

As I suspected in my previous post, the research was only and solely designed to compare OPUS to "treatment" as usual, and thus did not follow up on people who decided to take another, potentially more promising, route to recovery, than OPUS or "treatment" as usual. While these people seem to make up a considerable amount in both groups. Almost half of the initial participants in the study did not respond to the five-year-follow-up interview. Some of them certainly because they've become wiser than to remain uncritically cheerful about the received "treatment" in the meantime.

Of course, it is very nice that the dosage of neuroleptics in an OPUS setting, presumably thanks to the massive indoctrination and rat training offered by OPUS, is kept about 20% lower than in a "treatment" as usual setting. Nevertheless, this still is no reason to get over-the-top enthusiastic about OPUS as people in "treatment" as usual settings often are senselessly overdrugged, meaning that people in OPUS settings are just a little less overdrugged, and, well, as there still is a looong way from a little less overdrugged to the barely drugged at all of alternatives like Soteria or Open Dialog.

Did you scroll down to the "Funding" section? If so, you'll maybe remember that I referred to Merete Nordentoft as the Danish Fuller Torrey. Yup, also The Stanley Medical Research Institute funded this research project. Is it any wonder that drug-free, non-medical alternatives were of no interest to the researchers, and that learning to live with a chronic illness through OPUS is hailed to be as good as it can get?...



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(How I wish I had Photoshop!)